My youngest Sister Tania & her daughter Millie last April.
More inane ramblings of a semi-retarded..............retard? Enjoy:)
Written @ 13:33pm Thursday 20th April 2006 (9th Interferon Injection);
Just watching World Snooker on BBC2.
Got a very painful ulcer on the end of my tongue! Went out last night on my bike, met Jac at the bank in Twickenham (she owed me £150). Then I went on to Richmond Park gate and cycled around the Tamsin Trail going clockwise all the way back to Richmond gate again. I saw a fox that was really dark in colour. I saw Deer & Bats too. Then I went home along the tow-path to Teddington Lock & eventually back home. I was out for an hour and a half. I enjoyed it but do hate those steep parts sometimes! And those headwinds too!
Dad went to see a "Virtual" Frank Sinatra yesterday afternoon. Claire lost her mobile phone yesterday! I think we are deciding to call it a day as boyfriend and girlfriend. It seems a little pointless us being so far apart all the time. It is a real shame. Claire is so wonderful. So friends we will be instead.
Weather is getting much better!!!!!!!!!
Written @ 15:53pm Monday April 2006;
Friday Lee & I went for a bike ride around Richmond Park at 8pm. Nice ride too. I told Lee that Claire & I are just friends now seeing as though she is his Sister. Claire maybe moving to Orange CA to Chapman Uni in August (she actually ended up moving to San Diego).
I spent the day at my Mums in the gardenon Saturday. Very sunny. Don was there and we all did garden things. Then Tarn, Naif & Millie came. Millie is scared of Don because he has a beard like Father Christmas and he has no teeth. He is a nice bloke though. Daisy was there too but spent the entire time inside watching TV. Tarnia & I walked to the bank in Twickenham & back. I cycled my Mums new bike........nice bike:)
Foozle has gone missing! (Jacs blind cat) Early Sunday Morning.Jac & I looked for her & called her. I made loads of posters and put those up everywhere too. No calls yet! Poor thing!
Today I bought Series 4 of "Blake's 7" (just released) and series 1 of "American Dad". I also bought "The Mighty Boosh" series 1 &2 for Jac because she Loves it and she ain't borrowing mine!!! She has gone to Harley Street in London with Kate to see about botox and face peel thingys.....Nut case!! I am seeing dad later to play golf.........gym first.
Tarn is getting her new bike tomorrow. The same as Mums but with a kiddy seat for Millie.
Written @ 11:58am Tuesday April 25th 2006;
Dreams of sex & death..........As usual.
Still no Foozle!!
Went to gym and saw Lee yesterday. I don't think he is very happy at the moment! Then I went to my dads at 19:30pm and we watched Ronnie O'Sullivan play snooker. Dad had some maps of Fort William to show me for my trip there soon. The gym was is a right tip! The whole place needs re-furbishing if you ask me! I need a roof rack for my Kayaks soon.
Matt actually broke his rib on Monday when we were out riding! My tongue ulcer is much better! Still sore but it was bloody agony!! Blister on my lip is still there.
Written @ 11:03pm Wednesday April 26th 2006;
Tarn got her new bike yesterday. I cycled to the shop and met them there. Millie inparticular was very excited & couldn't wait to get on the thing. She had her little cycle helmet on too. Millie got in and we walked through Twickenham High Srteet so Millie got used to the seat. At Twickenham Green we cycled around and Millie Loved it and watched a dog chasing a ball. We all met daisy from School then went to Tarns to collect Daisys bike and then we all rode through to the end of Crane Park (Dog shit City!!) & back. Millie was singing "Daisy Daisy, this bike is made for two". Then I went off alone to Richmond Park for a proper ride of sorts. My usual thing in Richmond Park then meeting Jac by Subways for fuel.
Still Watching snooker.............Still no Foozle! I said to Jac that I reckon someone has stolen her.
Written @ 14:30pm Monday (May Day) 1st May 2006;
Alright! Still no Foozle! I got two calls at 8am on the 28th. Two different schools kids saw the same cat by my Mums old school. I went to see and saw it wasn't her! It looked a lot like her though! My heart went when I realised!
I have been out cycling on Friday evening from my flat to Bushy Park then to Hampton Court Palace, along the river Thames to Kingston Bridge then along the river again towards Richmond via Teddington. Then back home through Twickenham High St. I was out with Lee last night too. Richmond Park at night. Did the usual Saturday evening thing with take-away food at my Mums with Daisy & Tania.
I'm alright, ankles have been playing up when walking! I am getting a roof rack in the week for my Kayaks & bike.
(Me now) My God.................What a load of rubbish! What a boring predictable life! I do apologize if I am boring you to death!
You see why I hate diaries so much! I do hope that my blog isn't as f*****g boring as all this shit! I promise you that there will only be one more edition of "Yesterday's Pornography". God help us all;)
Jason
(C) JPT 2007
Wednesday, January 31, 2007
Monday, January 29, 2007
"Digging for Flesh & Blood"
The following post is based on a dream I had back on March 11th 2006 last year. I had been taking my Interferon therapy for some 17 days.....just two days after my 3rd Interferon injection. I found the dream I had written on a seperate sheet of paper that I had slipped into my "written diary" and had all but forgotten about it.
"Digging for Flesh & Blood"
What a garden! And what a bloody mess it is in! But hell! Who cares when the hole you are digging in it has things hidden there one can only dream of...
The sun was shining hard! The Summer was in full swing and I was feeling glad that I at least had a little shade from the sides of this hole that I was currently digging right in the middle of my Mum's front garden. It was still a sweaty affair I was having mind, but at least I was almost comfortable. The deeper that I dug, the higher the wall's became, the more shade I would enjoy thus the more digging I could achieve.
My Twin Sister Nicola was with me. At least I think it was Nicola. I was far too busy with the digging of my hole to especially notice anyone in particular. I am pretty sure though that it was one of my Sisters. She was lying out in the sun enjoying it's heat. My Mother was due back anytime now. She was preparing for a holiday and had her Son Mark with her. I would see them both as soon as they arrived back from wherever they had been. If I even noticed them return that is!
My mind wandered & I soon forgot about the person already in the garden and the people making their way to it. I had a hole to dig!
I must have dug down to about 4 or 5 feet before I began to find some very interesting artifacts. I had to keep drinking water as I was sweating so much! The sweat dripped from my nose and into the moist soil that I was excavating. My hands were sore and my nails were black with dirt and scratched and blunt!
The first artifact that I found buried was a black plastic bag filled with something flimsy but heavy. It felt like a small pile of magazines or something similar and after opening the dirt covered bag these are in fact what I found inside. They were pornagraphic in content and looking at the women displayed on the front cover looked like they were from the seventies. The date on each magazine (18 in total) confirmed that they were indeed from the 70's............1976 to be precise. I put these to one side and excitedly began to dig a little deeper, excavating more soil to see if there were anymore interesting things buried down in my hole.
My goodness, it was hot work and I was ever so grateful for the increasing size of the walls of my hole and the shade that they supplied!
It wasn't too long before I felt something hard under the raw skin of my finger tips. In fact there were numerous things that were seemingly unrelated to eachother and most certainly unrelated to the "dirty" mags I found just a little while before. The first of which was a small group of toys that I instantly recognized as my own toys from years ago when I was a child! Luke Skywalker's land speeder was just one of the toy's that I found in amongst various other's like Matchbox cars and an Action Man with Eagle Eye's. They were all covered in dirt, worn & scratched! I carefully set them down next to the magazines in a tidy little pile. I thought to myself that I would have fun giving them a clean with my "Sterits" that I use to swab clean my vein before I inject myself.
Just by the toys I discovered a very interesting thing which looked like some kind of important medical equipment. It looked as if it was a light beige when it was new but for all the dirt on it it could just have easily been brown originally! It was made from a hard, brittle plastic and had some strange looking buttons and dials attached to it. But some things on it I did recognize.......one of which was the syringe that was clipped to the side of the machine. It looked exactly like the ones that I inject myself with and although the syringe was dirty from being buried it was obvious to me that it was a used one as the plunger was all the way in and had dried blood almost black in colour showing intermittenly down the clear thin plastic tube that ended with a green butterfly needle, the base of which was blue in colour........my favorite. The thin steel needle had come away from the butterfly and was nowhere to be seen. Coming out of the machine right by the syringe's plunger was a kind of shaft that looked as though it's job would have been to push in the FactorVIII mechanically into my vein. In fact the whole thing resembled some kind of dialysis machine but for injecting blood transfusions into Haemophiliacs instead.
So there I sat thinking about all these things that I was finding. Who on god's earth buried these wonderful things down here? Why on Earth did I think of digging this hole in the first place? I had no idea at all what was down in this dirt! I began to feel emotional about the whole thing! I hoped to god that knowone looked into the hole and saw me crying! My tears fell away from my eyes and cut little clean tracks through the dirt & mixed with the sweat that was already covering my cheeks. One by one they dripped quietly towards the hot dirt and in my cofused head I was adamant that I heard the tiniest of hisses when the salty drops landed!
As I sat there I noticed that the sun had crept silently across the sky and was now shining directly down into the bottom of the hole! My good friend the shade had dried up and disappeared! My shoulders were beginning to burn and feel quite sore! I just sat there under the pounding heat and couldn't move! I needed to carry on digging! I needed to see what else I would find! It would be dark in three or four hours and my fingers had had enough!
I continued digging.........
Jason
*************************************************************************
What must I have looked like to my Mums neighbours or to the nosey residents of Brinsworth House over the back wall that might have seen me yesterday digging a little hole in my Mums back garden to 'Stage' todays photo! My 1980 Luke SkyWalker figure in one hand and a mid 80's 'Used' 60ml syringe in the other (I got a few strange things). Anyway, suffice to say that this photo was created soley for this particular post. I was kinda forced to really because of a complete lack of adequate photos to use already in my I-photos library. I wanted to add a 70's porn mag in the dirt too but don't have one;)
Oh, and about CBB........I voted for Shilpa.......& Shilpa won:)
***Update (09:45)*** Still no news on my 'Viral Load' results. And also I rang the RFH just now, they say that the sample that needs to be re-done is not the 'Viral Load' sample and only the 'Clinical Biochemistry' sample. I still need to go up to give it to them, but that can wait.
(C) JPT 2007
Saturday, January 27, 2007
49th Injection & Wearing My Heart on My ......Tissue.
Signs of.........Life?
Waiting.........for the HCV viral load test results to my beautiful looking blood that was literally sucked out of me on Monday. I remember walking up the stairs from the Haemophilia Centre up to the first floor, then following the black line to where non-haemophiliac people go to get their blood taken. I don't know why I follow the black line as I know exactly where to go.........I have been doing it for the last 48wks. But......as I was walking up to the little window, then waiting for someone to come to the window to see me..."Smile! You're on camera" reads a sign,.....for the first time I actually looked at my blood in the little glass vial. I was more than impressed with the dark red colour of it and also the way it stuck to the sides of the glass when I turned the vial around in my hand. I tried to imagine what it would look like spattered all over a brilliant white wall. I have seen a fair bit of blood in my time and have even experimented with it........sucking out whole syringe fulls of the stuff and playing around with it.......feeling it, smelling it and watching it thicken & clot, eventually turning black as it is left out in the air. Not recently I might add. Just when I was bored a few years ago. I have never purposely tasted my own blood as I have tasted enough of the horrible tasting stuff due to bleeding gums caused after numerous dental visits over the years! I wouldn't make a very good Vampire!
As I stood there marvelling at the glass contained life giving (mostly) liquid, I hoped that there was one less virus lurking inside there. I still have the tiny skin coloured circular plaster that was laid carefully across my punctured vein. I never put a plaster on at home......ever. I never need them. I just use one section of loo paper to blot the needle hole right as I pull the needle out. If the toilet paper is good enough for my bottom........it's good enough for my vein.
The photograph I have included with todays post is of a piece of tissue the same kind that I use all the time.....except that with this particular one I noticed as I lifted the tissue from my vein and looked underneath it to see if it had stopped bleeding, the shape of a heart! This is why I have the photo.......I just had to take a picture of it. I took it back in April 2005 after an injection of prophylactic FactorVIII. The blood is still wet and it dried almost black.......more of a dark brown in colour. I still have the actual tissue somewhere. I promise you that this is exactly the way it looked right after I lifted it up. Let me apologize if you are not too keen on the sight of blood. Being a Haemophiliac.......I don't quite understand why the sight of blood has the effect that it does on some people. I am not squeamish in the least......not surprisingly. If anything, at least you know what a Haemophiliacs blood infected with HIV & HCV looks like.........Just like yours.
So, how do I feel........waiting for this news? Feels just like any other day I reckon. If I knew exactly when the phone call was going to be, it might be a different story. I don't have a clue when the call will come and this is fine with me. What if it has come back sometime between the 12wk test and last Mondays? I know how I will feel if it has come back.........rather moody and withdrawn for a few days.....maybe a week. But I know for a fact that I will soon forget about it and just get on with my life. I got cycling to do & kayaking also. I was out last night in fact, over Richmond Park way with my buddy Lee. We came across a giant snowball that was left over from Tuesday morning. Nowhere near as big as the one I came across in Bushy Park..........actually, it was square too! We just had to stop and play around with it. We ended up completely demolishing the thing. It was so much fun. There was snow flying everywhere. In our eyes & face, Our mouths. Lee shoved a whole bunch down into the top of my cycle helmet! Big kids or what:) We were headed for the Hills but because I was stuck for 3 hours yesterday afternoon in the waiting area of "Kwik-Fit" for some new tyres,..........they said 45 minutes! I was frozen. Don't these places have heating? Anyway, I got my new tyres.....three in fact. I needed them pretty badly! And what with the ice and snow......pretty much important. Less important is the fact that My favorite "Celebs" are still in the BB house after last nights eviction.......all I need to do now is vote for the one I want to win on Sunday.
I am still waiting also for the missing figures from Mondays "Normal" blood result. I will post them here on the Blog as soon as I get them through the letter box......for those of you who are interested anyway. All those numbers mean absolutely nothing to me. And update my previous post too with them.
Took the first of my two extra Interferon injections on Thursday night. Have know idea if they will actually do any good at all. But one never knows do they. My Hep C virus might just need that tiny little extra slap!
*********************************UPDATE**********************************
08:51 Saturday, 27th Jan 2007.
I did my bit.......still doing in fact! Admirably too I might add! So why the fuck then do I receive in the post, not just 20 minutes ago, a "With Compliments" Royal Free Hospital headed slip of paper, attached to those missing figures from last Mondays "Normal" blood results, with the words;- "Jason: Unfortunately your blood sample sent to biochemistry (LFT's, etc)
was unsuitable for processing, so we need to repeat the blood test when you are next able to come. Sorry about that. Paul.....blah blah blah."
I mean what the fuck are LFT's? What bastard blood sample is he talking about? The "Normal" one or my viral load one? I know why I am so pissed off! Apart from the fact that I can't understand just how my blood can be "Unsuitable" for processing! Unless of course the sample in question was left lying around somewhere in a warm lab, gradually turning my sample into a juicy vial shaped piece of black pudding that is! I mean why else? And apart from the fact that I don't know what blood sample he is talking about......because even those 'Missing' figures that the note was stapled to have 'Missing' figures still! It's not rocket science is it! But the main thing that is really pissing me off is that it is a Saturday morning and I can't phone him up until Monday morning to find out nor pop in to give him the repeat blood sample that he requests! I think I will have to ask Ross over on the forum what the hell LFT's are and what blood sample they come from.
The only thing that makes me think that he may be talking about the 'Normal' bloods and not the important viral load bloods are the fact that on the print out of figures taken from my normal bloods taken last Monday there are still levels like AST's , ALT's & Bilirubin missing. The only one that was missing from last Mondays bloods but is actually included in this mornings print out are my Neutrophils......which are 1.42. I need to ask someone........I will be back later...
Just PM'd Ross over on the forum......waiting reply. But having thought about it a little more and gotten my head around the figures & what Paul wrote etc, I am beginning to think that what he is talking about are the "Clinical Biochemistry" side of last Mondays "Normal" bloods as apposed to the "Full Blood Count" half of last Mondays bloods (hence the present Neutrophils and missing ALT's etc). But more importantly, not the "Viral Load" bloods! I know I may sound really pissed off with all this and these missing figures etc.......and I am! But why? Why am I so annoyed? They will get done again on Monday, so why? I must have so little in my life or I just cannot see the vast amout of wonderful things that I know I do have? But what is getting in my way then? How can this curtain exsist in the first place? I'm not ill, nor am I dying. I have all my family & friends around me, I have numerous others in exactly the same boat with me, I'm healthy, I can walk (most times).........& I am still alive and enjoying life...mostly. I will find out soon and post back...
...Ross says it is probably best to phone up the RFH first thing Monday and find out what sort of sample has gone for a burton. I was going to do that anyway.......I needed to know today though!
.....Monday 29th Jan....I just rang them up and my hunch was correct. The sample isn't the important 'Viral Load' sample and just my 'Clinical Biochemistry' sample. I still need to get those results re-done. So all that 'Being Pissed' was unnessecary in the end. I think that the end of the day I am pissed because I am fed up with hospital mistakes.......albeit a tiny one, but this is where they begin isn't it.
Not seeing the big picture for all the Bloody.........blood?
Jason
(C) JPT 2007
Waiting.........for the HCV viral load test results to my beautiful looking blood that was literally sucked out of me on Monday. I remember walking up the stairs from the Haemophilia Centre up to the first floor, then following the black line to where non-haemophiliac people go to get their blood taken. I don't know why I follow the black line as I know exactly where to go.........I have been doing it for the last 48wks. But......as I was walking up to the little window, then waiting for someone to come to the window to see me..."Smile! You're on camera" reads a sign,.....for the first time I actually looked at my blood in the little glass vial. I was more than impressed with the dark red colour of it and also the way it stuck to the sides of the glass when I turned the vial around in my hand. I tried to imagine what it would look like spattered all over a brilliant white wall. I have seen a fair bit of blood in my time and have even experimented with it........sucking out whole syringe fulls of the stuff and playing around with it.......feeling it, smelling it and watching it thicken & clot, eventually turning black as it is left out in the air. Not recently I might add. Just when I was bored a few years ago. I have never purposely tasted my own blood as I have tasted enough of the horrible tasting stuff due to bleeding gums caused after numerous dental visits over the years! I wouldn't make a very good Vampire!
As I stood there marvelling at the glass contained life giving (mostly) liquid, I hoped that there was one less virus lurking inside there. I still have the tiny skin coloured circular plaster that was laid carefully across my punctured vein. I never put a plaster on at home......ever. I never need them. I just use one section of loo paper to blot the needle hole right as I pull the needle out. If the toilet paper is good enough for my bottom........it's good enough for my vein.
The photograph I have included with todays post is of a piece of tissue the same kind that I use all the time.....except that with this particular one I noticed as I lifted the tissue from my vein and looked underneath it to see if it had stopped bleeding, the shape of a heart! This is why I have the photo.......I just had to take a picture of it. I took it back in April 2005 after an injection of prophylactic FactorVIII. The blood is still wet and it dried almost black.......more of a dark brown in colour. I still have the actual tissue somewhere. I promise you that this is exactly the way it looked right after I lifted it up. Let me apologize if you are not too keen on the sight of blood. Being a Haemophiliac.......I don't quite understand why the sight of blood has the effect that it does on some people. I am not squeamish in the least......not surprisingly. If anything, at least you know what a Haemophiliacs blood infected with HIV & HCV looks like.........Just like yours.
So, how do I feel........waiting for this news? Feels just like any other day I reckon. If I knew exactly when the phone call was going to be, it might be a different story. I don't have a clue when the call will come and this is fine with me. What if it has come back sometime between the 12wk test and last Mondays? I know how I will feel if it has come back.........rather moody and withdrawn for a few days.....maybe a week. But I know for a fact that I will soon forget about it and just get on with my life. I got cycling to do & kayaking also. I was out last night in fact, over Richmond Park way with my buddy Lee. We came across a giant snowball that was left over from Tuesday morning. Nowhere near as big as the one I came across in Bushy Park..........actually, it was square too! We just had to stop and play around with it. We ended up completely demolishing the thing. It was so much fun. There was snow flying everywhere. In our eyes & face, Our mouths. Lee shoved a whole bunch down into the top of my cycle helmet! Big kids or what:) We were headed for the Hills but because I was stuck for 3 hours yesterday afternoon in the waiting area of "Kwik-Fit" for some new tyres,..........they said 45 minutes! I was frozen. Don't these places have heating? Anyway, I got my new tyres.....three in fact. I needed them pretty badly! And what with the ice and snow......pretty much important. Less important is the fact that My favorite "Celebs" are still in the BB house after last nights eviction.......all I need to do now is vote for the one I want to win on Sunday.
I am still waiting also for the missing figures from Mondays "Normal" blood result. I will post them here on the Blog as soon as I get them through the letter box......for those of you who are interested anyway. All those numbers mean absolutely nothing to me. And update my previous post too with them.
Took the first of my two extra Interferon injections on Thursday night. Have know idea if they will actually do any good at all. But one never knows do they. My Hep C virus might just need that tiny little extra slap!
*********************************UPDATE**********************************
08:51 Saturday, 27th Jan 2007.
I did my bit.......still doing in fact! Admirably too I might add! So why the fuck then do I receive in the post, not just 20 minutes ago, a "With Compliments" Royal Free Hospital headed slip of paper, attached to those missing figures from last Mondays "Normal" blood results, with the words;- "Jason: Unfortunately your blood sample sent to biochemistry (LFT's, etc)
was unsuitable for processing, so we need to repeat the blood test when you are next able to come. Sorry about that. Paul.....blah blah blah."
I mean what the fuck are LFT's? What bastard blood sample is he talking about? The "Normal" one or my viral load one? I know why I am so pissed off! Apart from the fact that I can't understand just how my blood can be "Unsuitable" for processing! Unless of course the sample in question was left lying around somewhere in a warm lab, gradually turning my sample into a juicy vial shaped piece of black pudding that is! I mean why else? And apart from the fact that I don't know what blood sample he is talking about......because even those 'Missing' figures that the note was stapled to have 'Missing' figures still! It's not rocket science is it! But the main thing that is really pissing me off is that it is a Saturday morning and I can't phone him up until Monday morning to find out nor pop in to give him the repeat blood sample that he requests! I think I will have to ask Ross over on the forum what the hell LFT's are and what blood sample they come from.
The only thing that makes me think that he may be talking about the 'Normal' bloods and not the important viral load bloods are the fact that on the print out of figures taken from my normal bloods taken last Monday there are still levels like AST's , ALT's & Bilirubin missing. The only one that was missing from last Mondays bloods but is actually included in this mornings print out are my Neutrophils......which are 1.42. I need to ask someone........I will be back later...
Just PM'd Ross over on the forum......waiting reply. But having thought about it a little more and gotten my head around the figures & what Paul wrote etc, I am beginning to think that what he is talking about are the "Clinical Biochemistry" side of last Mondays "Normal" bloods as apposed to the "Full Blood Count" half of last Mondays bloods (hence the present Neutrophils and missing ALT's etc). But more importantly, not the "Viral Load" bloods! I know I may sound really pissed off with all this and these missing figures etc.......and I am! But why? Why am I so annoyed? They will get done again on Monday, so why? I must have so little in my life or I just cannot see the vast amout of wonderful things that I know I do have? But what is getting in my way then? How can this curtain exsist in the first place? I'm not ill, nor am I dying. I have all my family & friends around me, I have numerous others in exactly the same boat with me, I'm healthy, I can walk (most times).........& I am still alive and enjoying life...mostly. I will find out soon and post back...
...Ross says it is probably best to phone up the RFH first thing Monday and find out what sort of sample has gone for a burton. I was going to do that anyway.......I needed to know today though!
.....Monday 29th Jan....I just rang them up and my hunch was correct. The sample isn't the important 'Viral Load' sample and just my 'Clinical Biochemistry' sample. I still need to get those results re-done. So all that 'Being Pissed' was unnessecary in the end. I think that the end of the day I am pissed because I am fed up with hospital mistakes.......albeit a tiny one, but this is where they begin isn't it.
Not seeing the big picture for all the Bloody.........blood?
Jason
(C) JPT 2007
The Mighty C say's go here for more.....
Interferon Injection
Thursday, January 25, 2007
"Winter Wonderland"......for five minutes anyway.
Better than being in bed...(spot the Deer in the background)
"Grabbed by a wet, freezing cold giant metallic hand and briefly being dipped entirely into the coldest, freshest and cleanest salt water ocean......".
That was my experience of trying my first ever oyster yesterday. Quite a strange and refreshing experience to say the least. That was during lunch at a very good fish restuarant with my friend Debbie yesterday in celebration of my 36th Birthday. Debbie got me a great book called "Fat" by Rob Grant. I can't wait to finish with my current Koontz novel so I can start it.
That was lunch today, but what about your birthday I hear you cry. As you know I turned 36 on Tuesday along with my twin Sister Nicola. My day was alright as birthdays go. It makes a change not to have to attend some appointment or another up at the RFH on it. Firstly on Tuesday I went and helped my friend Lee and his wife Nicola (my twin) fill a skip up with old carpet, an old kitchen etc, taken out from their new house they have just recently bought in Hampton. It is amazing just how quick one can fill an empty skip up entirely! The sky was blue but the air was, unlike the recent mild weather, cool.........a sign of things to come it seems (keep reading). I don't envy them at all, what with all the work that needs to be carried out on the place! They have done it before though and know exactly what to expect.
I drove my bike there on top of the car as it still had the punture that I received the Sunday before up Leith Hill. I knew I would have trouble getting the tyre off! The last time I tried I got a bleed in my right elbow! Can you believe I can cycle over roots and mud, up and down hills and my arm is ok, but fixing a puncture...........useless! It's the tyre! It is so bloody difficult to get on and off! Lee thinks that my rims might be designed for tubeless tyres? He even had trouble getting the thing off and he is pretty strong! Anyway, we replaced the inner tube and the tyre with a new one (the one on it was ready for replacement anyway.......from a whole summers worth of mountain biking) and pumped it back up. So off we went and did a few more things around their new house, preparing it for new central heating etc. Actually, I just took photos and watched Lee machine chisel a whole room back to the bare brick because of a damp problem that needs seeing to.
I was dying for a bike ride so I went off home with my newly inflated bike and took off for a ride to Hampton Court and Bushy Park. It didn't go quite as intended because guess what? Halway around my ride my tyre slowly went down! All I can think is that because the tyre is so tight to get back on, it inadvertently pinched the new tube? But why stay up for so long since pumping it up? Maybe it was just a "normal" puncture......a prickle or splinter from a tree. Oh, by the way, that tree that I saw last week that looked as if it had been pushed over a few feet by the storm? It didn't fall over in the end but when I found it again it had be cut down with a chainsaw. So many trees were knocked over in the last week it is unbelievable! So sad!
So there I was with a puncture, albeit a slow one and was forced to keep pumping the thing up until I got back home where I had enough of the incredible hulk in me to attempt to repair it myself. I did.
Later on Nicola & I met up at our Mums for a bit and saw three gritters drive by one after the other....another sign of things to come in the morning. Then later still Nicola, Lee & I went for a meal together at out local "Beefeater" restaurant.......and after checking my tyre was still up and having a Lovely chat on the phone with Becs it was bedtime. My tyre was still up in the morning & what a morning it would turn out to be!
As I already said, I was speaking to a friend of mine around midnight on Tuesday, Becky......my first girlfriend from way back in the late 80's (yes I do still keep in touch with all my girlfriends......all three in fact) and she lives up north in Leeds with her husband and little boy........anyway, she said it was snowing there and I looked out of my window and saw it wasn't here and didn't think anymore about it.........and then at 07:30 yesterday morning I get a phone call from my "middle" girlfriend Jac who lives just around the corner, who told me to look out of my window. I was fast asleep and hate being woken up normally, but when I saw the beautiful snow I was awake and dressed in a matter of minutes! The first thing I noticed were the single set of boot prints running up the path next to a single set of tiny cat paw prints running beside them. So cute:) The next thing I noticed was the sound of the snow under foot as I stepped onto the freshly laid blanket. Crunch...crunch...crunch. What a wonderful sound. Muffled crunches. It was perfect snow for snowballs and snowmen. I took a few photos and went back indoors and even contemplated going back to bed! But instead I got all my cycling gear on and grabbed my 08:27am tablets and a drink and made my way through the snow to Bushy Park knowing just how Lovely it would look. I wasn't disappointed.
A never before seen image of my frozen balls...
On entering the Park I was greeted by a very welcome sight. The whole park looked as if it had been sprinkled over with icing powder. The normal green & brown & yellow of the park had been transported into a black & white winter wonderland. There were hundreds upon hundreds of Deer running around in it, other cyclists riding on it, people on their way to work or out with their dogs walking on it, squirrels farting around for buried nuts in it, tiny little dicky birds bathing in it, students from the nearby college rolling up a giant snowball across it and last but not least.........me taking it all in........in it. My tyre stayed up and two and a half hours later I was back home with frozen toes and cold fingers. I got the cold feet and hands because on my way back out of Kingston Gate, where the students had left the snowball alone and were probably now in class with bright red fingers & noses.......I had a quick look around, saw I was all alone and rolled the giant snowball a head. Dirty, but a head nonetheless. I Loved it...the whole lot. I wish it was like this everyday!! I do hope the snow comes back soon. It has been ages since I have been out in the snow and the first time ever I had been in it on my bike. Brilliant! MORE!!
After all the excitement over the last week, what with my bike rides, the storm, my birthday and the snow, I am feeling a little...........deflated....like my tyre. I still have a mouth filled with ulcers and a few coldsores too! Plus I want to know what the results of my blood test are! I don't care what they are, I just want to know! Did I mean that? About the not caring? I don't know. Life is a funny thing isn't it?
Jason
(C) JPT 2007
"Grabbed by a wet, freezing cold giant metallic hand and briefly being dipped entirely into the coldest, freshest and cleanest salt water ocean......".
That was my experience of trying my first ever oyster yesterday. Quite a strange and refreshing experience to say the least. That was during lunch at a very good fish restuarant with my friend Debbie yesterday in celebration of my 36th Birthday. Debbie got me a great book called "Fat" by Rob Grant. I can't wait to finish with my current Koontz novel so I can start it.
That was lunch today, but what about your birthday I hear you cry. As you know I turned 36 on Tuesday along with my twin Sister Nicola. My day was alright as birthdays go. It makes a change not to have to attend some appointment or another up at the RFH on it. Firstly on Tuesday I went and helped my friend Lee and his wife Nicola (my twin) fill a skip up with old carpet, an old kitchen etc, taken out from their new house they have just recently bought in Hampton. It is amazing just how quick one can fill an empty skip up entirely! The sky was blue but the air was, unlike the recent mild weather, cool.........a sign of things to come it seems (keep reading). I don't envy them at all, what with all the work that needs to be carried out on the place! They have done it before though and know exactly what to expect.
I drove my bike there on top of the car as it still had the punture that I received the Sunday before up Leith Hill. I knew I would have trouble getting the tyre off! The last time I tried I got a bleed in my right elbow! Can you believe I can cycle over roots and mud, up and down hills and my arm is ok, but fixing a puncture...........useless! It's the tyre! It is so bloody difficult to get on and off! Lee thinks that my rims might be designed for tubeless tyres? He even had trouble getting the thing off and he is pretty strong! Anyway, we replaced the inner tube and the tyre with a new one (the one on it was ready for replacement anyway.......from a whole summers worth of mountain biking) and pumped it back up. So off we went and did a few more things around their new house, preparing it for new central heating etc. Actually, I just took photos and watched Lee machine chisel a whole room back to the bare brick because of a damp problem that needs seeing to.
I was dying for a bike ride so I went off home with my newly inflated bike and took off for a ride to Hampton Court and Bushy Park. It didn't go quite as intended because guess what? Halway around my ride my tyre slowly went down! All I can think is that because the tyre is so tight to get back on, it inadvertently pinched the new tube? But why stay up for so long since pumping it up? Maybe it was just a "normal" puncture......a prickle or splinter from a tree. Oh, by the way, that tree that I saw last week that looked as if it had been pushed over a few feet by the storm? It didn't fall over in the end but when I found it again it had be cut down with a chainsaw. So many trees were knocked over in the last week it is unbelievable! So sad!
So there I was with a puncture, albeit a slow one and was forced to keep pumping the thing up until I got back home where I had enough of the incredible hulk in me to attempt to repair it myself. I did.
Later on Nicola & I met up at our Mums for a bit and saw three gritters drive by one after the other....another sign of things to come in the morning. Then later still Nicola, Lee & I went for a meal together at out local "Beefeater" restaurant.......and after checking my tyre was still up and having a Lovely chat on the phone with Becs it was bedtime. My tyre was still up in the morning & what a morning it would turn out to be!
As I already said, I was speaking to a friend of mine around midnight on Tuesday, Becky......my first girlfriend from way back in the late 80's (yes I do still keep in touch with all my girlfriends......all three in fact) and she lives up north in Leeds with her husband and little boy........anyway, she said it was snowing there and I looked out of my window and saw it wasn't here and didn't think anymore about it.........and then at 07:30 yesterday morning I get a phone call from my "middle" girlfriend Jac who lives just around the corner, who told me to look out of my window. I was fast asleep and hate being woken up normally, but when I saw the beautiful snow I was awake and dressed in a matter of minutes! The first thing I noticed were the single set of boot prints running up the path next to a single set of tiny cat paw prints running beside them. So cute:) The next thing I noticed was the sound of the snow under foot as I stepped onto the freshly laid blanket. Crunch...crunch...crunch. What a wonderful sound. Muffled crunches. It was perfect snow for snowballs and snowmen. I took a few photos and went back indoors and even contemplated going back to bed! But instead I got all my cycling gear on and grabbed my 08:27am tablets and a drink and made my way through the snow to Bushy Park knowing just how Lovely it would look. I wasn't disappointed.
A never before seen image of my frozen balls...
On entering the Park I was greeted by a very welcome sight. The whole park looked as if it had been sprinkled over with icing powder. The normal green & brown & yellow of the park had been transported into a black & white winter wonderland. There were hundreds upon hundreds of Deer running around in it, other cyclists riding on it, people on their way to work or out with their dogs walking on it, squirrels farting around for buried nuts in it, tiny little dicky birds bathing in it, students from the nearby college rolling up a giant snowball across it and last but not least.........me taking it all in........in it. My tyre stayed up and two and a half hours later I was back home with frozen toes and cold fingers. I got the cold feet and hands because on my way back out of Kingston Gate, where the students had left the snowball alone and were probably now in class with bright red fingers & noses.......I had a quick look around, saw I was all alone and rolled the giant snowball a head. Dirty, but a head nonetheless. I Loved it...the whole lot. I wish it was like this everyday!! I do hope the snow comes back soon. It has been ages since I have been out in the snow and the first time ever I had been in it on my bike. Brilliant! MORE!!
After all the excitement over the last week, what with my bike rides, the storm, my birthday and the snow, I am feeling a little...........deflated....like my tyre. I still have a mouth filled with ulcers and a few coldsores too! Plus I want to know what the results of my blood test are! I don't care what they are, I just want to know! Did I mean that? About the not caring? I don't know. Life is a funny thing isn't it?
Jason
(C) JPT 2007
Tuesday, January 23, 2007
-016020-
A pot of gold or a heap of shit...
That's it.......all done. They have my blood......most of it..... and all I can do is wait for them to phone me in a week or so to tell me the news. And yes, they will be telling me the results over the phone. I have done my bit (nearly;) Just sit back I suppose and do what I have been doing....cycling, Blogging......thats it really....& enjoying the freezing cold weather that has embarked on England just now. I have been waiting for the cold and it seems it is here......big time!
My trip into the RFH was as stinky and unbreathable as it usually is. It was made worse so since my normal route in was unavailable to me due to "points failure" at Acton. I was forced to jump back on the fast train into Waterloo and get the Northern Line into Belsize Park underground station, which is right by the hospital. But at least I got a different batch of graffiti to look at instaed of the boring shit that lines the Silverlink train line. My new route yesterday takes twice as long too and don't my ankles know it!
I won't bore you with too much of my boring day but to summarize......My Doctors are very pleased with me for finishing and for managing it all so well. They took a shit load of blood, weighed me and told me that I was done and to piss-off!
Only joking;) But before I went I did ask for (& got) print outs of all of my past blood results during the whole of my tx and my weight for each visit too. What I have done is copy them all out (important ones that is) below so you can see my levels etc. They make absolutely no sense to me at all.....just numbers! They were pleased with yesterdays results (as usual) I might add. But someone might be interested to see them?
I am still not done with tx though. Remember the two extra Interferon shots? But none of that matters really. The main thing is I have done my 48wks of tx and now I wait...
***Please skip to the bottom for normalcy;)***
Pre-Treatment Bloods (18th Oct 05)
Haemoglobin: 15.7
White Blood Cells: 3.15
Neutrophils: 1.70
Platelets: 108
ALT: 182
Bilirubin: 9
February Bloods....first day of tx (23rd Feb 06) Weight: 78.3kg
Haemoglobin: 17.1
White Blood Cells: 3.47
Neutrophils: 1.69
Platelets: 122
ALT: n/a
Bilirubin: n/a
March Bloods#1 (10th Mar 06) Weight: 77.3kg
Haemoglobin: 13.3
White Blood Cells: 2.10
Neutrophils: 1.12
Platelets: 96
ALT: 82
Bilirubin: 29
March Bloods#2 (24th Mar 06) Weight: 77.7kg
Haemoglobin: 12.9
White Blood Cells: 1.60
Neutrophils: 0.77
Platelets: 84
ALT: 73
Bilirubin: 24
April Bloods#1 (7th Apr 06) Weight: 77.6kg
Haemoglobin: 12.0
White Blood Cells: 1.26
Neutrophils: 0.74
Platelets: 80
ALT: 60
Bilirubin: 25
April Bloods#2 (21st Apr 06) Weight: 77.7
Haemoglobin: 11.7
White Blood Cells: 2.12
Neutrophils: 1.35
Platelets: 97
ALT: 52
Bilirubin: 20
May Bloods#1 (3rd May 06) Weight: 77.6kg
Haemoglobin: 12.7
White Blood Cells: 2.53
Neutrophils: 1.23
Platelets: 108
ALT: 46
Bilirubin: 22
May Bloods#2 (19th May 06) Weight: 77.5kg
Haemoglobin: 12.0
White Blood Cells: 1.75
Neutrophils: 0.90
Platelets: 113
ALT: 25
Bilirubin: 21
June Bloods#1 (2nd Jun 06) Weight: 77.3kg
Haemoglobin: 11.9
White Blood Cells: 2.07
Neutrophils: 1.02
Platelets: 99
ALT: 23
Bilirubin: 18
June Bloods#2 (Jun 16th 06) Weight: 74.4kg
Haemoglobin: 11.7
White Blood Cells: 2.15
Neutrophils: 1.18
Platelets: 129
ALT: 21
Bilirubin: 24
July Bloods#1 (1st Jul 06) Weight: 74.5kg
Haemoglobin: 11.2
White Blood Cells: 2.09
Neutrophils: 0.89
Platelets: 91
ALT: 20
Bilirubin: 21
July Bloods#2 (24th Jul 06) Weight: 73.4kg
Haemoglobin: 11.8
White Blood Cells: 2.61
Neutrophils: 1.58
Platelets: 111
ALT: 19
Bilirubin: 16
August Bloods (18th Aug 06) Weight: 73.5kg
Haemoglobin: 11.8
White Blood Cells: 2.85
Neutrophils: 1.70
Platelets: 135
ALT: 18
Bilirubin: 24
September Bloods (15th Sep 06) Weight: 73.9kg
Haemoglobin: 12.1
White Blood Cells: 3.40
Neutrophils: 2.15
Platelets: 124
ALT: 22
Bilirubin: 25
October Bloods#1 (2nd Oct 06) Weight: 73.0kg
Haemoglobin: 11.2
White Blood Cells: 2.49
Neutrophils: 1.24
Platelets: 142
ALT: 20
Bilirubin: 20
October Bloods#2 (13th Oct 06) Weight: 72.3kg
Haemoglobin: 11.9
White Blood Cells: 4.06
Neutrophils: 3.07
Platelets: 175
ALT: 21
Bilirubin: 19
November Bloods#1 (1st Nov 06) Weight: 73.0kg
Haemoglobin: 12.6
White Blood Cells: 3.19
Neutrophils: 2.04
Platelets: 125
ALT: 18
Bilirubin: 22
November Bloods#2 (13th Nov 06) Weight: 70.9kg
Haemoglobin: 12.4
White Blood Cells: 3.03
Neutrophils: 1.74
Platelets: 146
ALT: 20
Bilirubin: 18
December Bloods (14th Dec 06) Weight: 71.2kg
Haemoglobin: 12.5
White Blood Cells: 2.74
Neutrophils: n/a
Platelets: 123
ALT: 21
Bilirubin: 17
January Bloods (22nd Jan 07) My 48th shot was taken on 18th Jan. Weight: 71.3kg
Haemoglobin: 12.1
White Blood Cells: 2.70
Neutrophils: 1.42
Platelets: 144
ALT: 20
Bilirubin: 16
Ok......you can wake up now. Exactly.....but these figures mean quite a lot to me. They mean that I have had the best chance possible whilst administering my Interferon/Ribavirin during the last 48wks. I was on the maximum dose of Interferon and the maximum dose of Ribavirin, with no dosage reductions with either during the whole time. I stand a pretty good chance I reckon of killing this virus once and for all.
As you can see by my weight entries for each month, It looks as though I have lost a little since I began tx. I didn't even notice it to be honest. Actually, I hardly believe those figures my self! Maybe thier machine is faulty? It wouldn't surprise me considering how old it looks! I remember sitting in that "special chair" when I was little! My weight records that I kept whilst I was visiting the gym are so different (the machine was mechanical too....re-set to zero before use) so I don't know. The reason for the weight loss seems obvious to me though. It seems to have started dropping around June. This was when I packed in going to the gym. I was quite big (for me) but just got fed up with the stink & germs in there! This meant that I was out on my bike twice as much as I normally was, hence the weight loss. I was doing mostly upper body weights in the gym. The loss of my appetite at the beginning of tx doesn't seem to have affected my weight......thank you "Teddington Kebab House", "KFC" & "MacDonalds";) Even my week long bout of diarrhea (food poisoning) back at the end of September didn't seem to effect my weight that much.....it just continued to fall at an even pace. I think I ought to add here that I did change my diet quite a lot during the sweltering heat of the Summer and I seemed to have stuck to it. Oh, & I was eating tonnes of Humus too which I stopped completely (since the diarrhea) and didn't have an alternative foodstuff to replace it with. I have since December however started to eat it again and look what happens......my weight starts to creep back up again. Do I sound as if I am obsessed by my weight?.......because I'm not if you can beleive it. Is any of this interesting? Or shall I shut up now;)
The photograph I took on Sunday by the cricket pitch, halfway up Leith Hill. I hadn't been on these trails since last autumn and was eager to see how the trails had coped in the rain & recent storm. Not bad all in all but the trees and branches down from the storm last week were horrendous! It was like 87 all over again! I was out for over three hours all alone and had wonderful blue skies all afternoon, then over came a rain cloud, dropped it's load causing a brilliant rainbow in the process and then promtly disappeared again. I got a puncture just then too! I would have probably been out longer if I hadn't. The maintenance work that was supposedly carried out on "Summer Lightning" on Jan 14th wasn't evident.........The bottom section was unriderble because of the weather! It seems all of their good work has be wrecked! But having said that, what do I know about trail building eh;) Great fun though & very mucky:)
The title of my post by the way is my hospital number. I probably shouldn't post it on here, but who cares. I have had that number since the mid 70's when I first became an out-patient at the Royal Free Hospital in Hampstead, London. And did you know.......I have only just realized that the numbers add up to 9 (another one to go with my "Digital Root 9" post). I find that impossible to believe!
I am not a number.......I am a free man!
I shall let you know the results of my viral load as soon as I get them.
Jason
P.s. My Sister Nicola & I are 36 today:)
(C) JPT 2007
That's it.......all done. They have my blood......most of it..... and all I can do is wait for them to phone me in a week or so to tell me the news. And yes, they will be telling me the results over the phone. I have done my bit (nearly;) Just sit back I suppose and do what I have been doing....cycling, Blogging......thats it really....& enjoying the freezing cold weather that has embarked on England just now. I have been waiting for the cold and it seems it is here......big time!
My trip into the RFH was as stinky and unbreathable as it usually is. It was made worse so since my normal route in was unavailable to me due to "points failure" at Acton. I was forced to jump back on the fast train into Waterloo and get the Northern Line into Belsize Park underground station, which is right by the hospital. But at least I got a different batch of graffiti to look at instaed of the boring shit that lines the Silverlink train line. My new route yesterday takes twice as long too and don't my ankles know it!
I won't bore you with too much of my boring day but to summarize......My Doctors are very pleased with me for finishing and for managing it all so well. They took a shit load of blood, weighed me and told me that I was done and to piss-off!
Only joking;) But before I went I did ask for (& got) print outs of all of my past blood results during the whole of my tx and my weight for each visit too. What I have done is copy them all out (important ones that is) below so you can see my levels etc. They make absolutely no sense to me at all.....just numbers! They were pleased with yesterdays results (as usual) I might add. But someone might be interested to see them?
I am still not done with tx though. Remember the two extra Interferon shots? But none of that matters really. The main thing is I have done my 48wks of tx and now I wait...
***Please skip to the bottom for normalcy;)***
Pre-Treatment Bloods (18th Oct 05)
Haemoglobin: 15.7
White Blood Cells: 3.15
Neutrophils: 1.70
Platelets: 108
ALT: 182
Bilirubin: 9
February Bloods....first day of tx (23rd Feb 06) Weight: 78.3kg
Haemoglobin: 17.1
White Blood Cells: 3.47
Neutrophils: 1.69
Platelets: 122
ALT: n/a
Bilirubin: n/a
March Bloods#1 (10th Mar 06) Weight: 77.3kg
Haemoglobin: 13.3
White Blood Cells: 2.10
Neutrophils: 1.12
Platelets: 96
ALT: 82
Bilirubin: 29
March Bloods#2 (24th Mar 06) Weight: 77.7kg
Haemoglobin: 12.9
White Blood Cells: 1.60
Neutrophils: 0.77
Platelets: 84
ALT: 73
Bilirubin: 24
April Bloods#1 (7th Apr 06) Weight: 77.6kg
Haemoglobin: 12.0
White Blood Cells: 1.26
Neutrophils: 0.74
Platelets: 80
ALT: 60
Bilirubin: 25
April Bloods#2 (21st Apr 06) Weight: 77.7
Haemoglobin: 11.7
White Blood Cells: 2.12
Neutrophils: 1.35
Platelets: 97
ALT: 52
Bilirubin: 20
May Bloods#1 (3rd May 06) Weight: 77.6kg
Haemoglobin: 12.7
White Blood Cells: 2.53
Neutrophils: 1.23
Platelets: 108
ALT: 46
Bilirubin: 22
May Bloods#2 (19th May 06) Weight: 77.5kg
Haemoglobin: 12.0
White Blood Cells: 1.75
Neutrophils: 0.90
Platelets: 113
ALT: 25
Bilirubin: 21
June Bloods#1 (2nd Jun 06) Weight: 77.3kg
Haemoglobin: 11.9
White Blood Cells: 2.07
Neutrophils: 1.02
Platelets: 99
ALT: 23
Bilirubin: 18
June Bloods#2 (Jun 16th 06) Weight: 74.4kg
Haemoglobin: 11.7
White Blood Cells: 2.15
Neutrophils: 1.18
Platelets: 129
ALT: 21
Bilirubin: 24
July Bloods#1 (1st Jul 06) Weight: 74.5kg
Haemoglobin: 11.2
White Blood Cells: 2.09
Neutrophils: 0.89
Platelets: 91
ALT: 20
Bilirubin: 21
July Bloods#2 (24th Jul 06) Weight: 73.4kg
Haemoglobin: 11.8
White Blood Cells: 2.61
Neutrophils: 1.58
Platelets: 111
ALT: 19
Bilirubin: 16
August Bloods (18th Aug 06) Weight: 73.5kg
Haemoglobin: 11.8
White Blood Cells: 2.85
Neutrophils: 1.70
Platelets: 135
ALT: 18
Bilirubin: 24
September Bloods (15th Sep 06) Weight: 73.9kg
Haemoglobin: 12.1
White Blood Cells: 3.40
Neutrophils: 2.15
Platelets: 124
ALT: 22
Bilirubin: 25
October Bloods#1 (2nd Oct 06) Weight: 73.0kg
Haemoglobin: 11.2
White Blood Cells: 2.49
Neutrophils: 1.24
Platelets: 142
ALT: 20
Bilirubin: 20
October Bloods#2 (13th Oct 06) Weight: 72.3kg
Haemoglobin: 11.9
White Blood Cells: 4.06
Neutrophils: 3.07
Platelets: 175
ALT: 21
Bilirubin: 19
November Bloods#1 (1st Nov 06) Weight: 73.0kg
Haemoglobin: 12.6
White Blood Cells: 3.19
Neutrophils: 2.04
Platelets: 125
ALT: 18
Bilirubin: 22
November Bloods#2 (13th Nov 06) Weight: 70.9kg
Haemoglobin: 12.4
White Blood Cells: 3.03
Neutrophils: 1.74
Platelets: 146
ALT: 20
Bilirubin: 18
December Bloods (14th Dec 06) Weight: 71.2kg
Haemoglobin: 12.5
White Blood Cells: 2.74
Neutrophils: n/a
Platelets: 123
ALT: 21
Bilirubin: 17
January Bloods (22nd Jan 07) My 48th shot was taken on 18th Jan. Weight: 71.3kg
Haemoglobin: 12.1
White Blood Cells: 2.70
Neutrophils: 1.42
Platelets: 144
ALT: 20
Bilirubin: 16
Ok......you can wake up now. Exactly.....but these figures mean quite a lot to me. They mean that I have had the best chance possible whilst administering my Interferon/Ribavirin during the last 48wks. I was on the maximum dose of Interferon and the maximum dose of Ribavirin, with no dosage reductions with either during the whole time. I stand a pretty good chance I reckon of killing this virus once and for all.
As you can see by my weight entries for each month, It looks as though I have lost a little since I began tx. I didn't even notice it to be honest. Actually, I hardly believe those figures my self! Maybe thier machine is faulty? It wouldn't surprise me considering how old it looks! I remember sitting in that "special chair" when I was little! My weight records that I kept whilst I was visiting the gym are so different (the machine was mechanical too....re-set to zero before use) so I don't know. The reason for the weight loss seems obvious to me though. It seems to have started dropping around June. This was when I packed in going to the gym. I was quite big (for me) but just got fed up with the stink & germs in there! This meant that I was out on my bike twice as much as I normally was, hence the weight loss. I was doing mostly upper body weights in the gym. The loss of my appetite at the beginning of tx doesn't seem to have affected my weight......thank you "Teddington Kebab House", "KFC" & "MacDonalds";) Even my week long bout of diarrhea (food poisoning) back at the end of September didn't seem to effect my weight that much.....it just continued to fall at an even pace. I think I ought to add here that I did change my diet quite a lot during the sweltering heat of the Summer and I seemed to have stuck to it. Oh, & I was eating tonnes of Humus too which I stopped completely (since the diarrhea) and didn't have an alternative foodstuff to replace it with. I have since December however started to eat it again and look what happens......my weight starts to creep back up again. Do I sound as if I am obsessed by my weight?.......because I'm not if you can beleive it. Is any of this interesting? Or shall I shut up now;)
The photograph I took on Sunday by the cricket pitch, halfway up Leith Hill. I hadn't been on these trails since last autumn and was eager to see how the trails had coped in the rain & recent storm. Not bad all in all but the trees and branches down from the storm last week were horrendous! It was like 87 all over again! I was out for over three hours all alone and had wonderful blue skies all afternoon, then over came a rain cloud, dropped it's load causing a brilliant rainbow in the process and then promtly disappeared again. I got a puncture just then too! I would have probably been out longer if I hadn't. The maintenance work that was supposedly carried out on "Summer Lightning" on Jan 14th wasn't evident.........The bottom section was unriderble because of the weather! It seems all of their good work has be wrecked! But having said that, what do I know about trail building eh;) Great fun though & very mucky:)
The title of my post by the way is my hospital number. I probably shouldn't post it on here, but who cares. I have had that number since the mid 70's when I first became an out-patient at the Royal Free Hospital in Hampstead, London. And did you know.......I have only just realized that the numbers add up to 9 (another one to go with my "Digital Root 9" post). I find that impossible to believe!
I am not a number.......I am a free man!
I shall let you know the results of my viral load as soon as I get them.
Jason
P.s. My Sister Nicola & I are 36 today:)
(C) JPT 2007
The Mighty C say's go here for more.....
My Birthday
Monday, January 22, 2007
"Stains Remaining"
Figure in a bed stencil, Brick Lane, Brixton.
Is it a woman or a child? Definitely female. Shiny hair tied back in a little pony tail. Dressed in an old Victorian, thin & worn dirty dress. Still pretty. Pretty still. Very still. This deathly figure lying on her side, serene, at peace. Too far past tired to wake. Was she facing slightly away from me or was I standing just slightly behind her, not wanting the full sight? For I knew she was dead. Far too tired I said. The innocence of yawning a ghost in the past. Someone must know her past. She was dead. I could see that. The candle in the corner of the room was following suit. Flickering it's final flames. Soon it will be dark in here. Was she growing out from the mattress or falling into it? She was stuck halfway, frozen. I tried to move around her. The porcelain skin cheeks. Or was it wax? Almost invisible light blue veins. Her mouth was home to her thumb. Her pale grey eyelids were as still as a sea of years worn granite. Thumb & mouth fused together, airtight. The soft knuckle of her index finger fast asleep tight against her 'Where angels did shush'. Nostrils blocked with soot or dust. Black. Closer. I need to hold. Comfort. For me. One step and I almost fall over her tiny whisper of a body. It was a child afterall. Too close now I stepped back to see. Out stretched arms to scoop up this tiny human puddle. Fused to the mattress. Difficulties lie ahead. I had to tear that poor child from her rotten putrid sheets. At arms reach still, I pause and wonder. If this is right. Afraid of the closeness I shudder with guilt and curiosity. My hands and forearms are wet from her putrification. Her stench unbearable but I am strong. I must stay strong. The stain on the sheets penetrate deep into her mattress. Her final sleeping place. Her best one. Ever. The happily tired, but calm looking expression on her face tells me all I need to know. I want to bend my arms. Bring her closer to me and bury my face. Hide. I need to cry into something. I just can't bring myself too near. What am I afraid of? But I feel so sorry for her. I imagine her tummy gently rise and fall. My arms are locked out straight. Can I hear air? The almost indistinguishable hiss of air through tiny nostrils. Just the radiator. Is she dead? She is dead isn't she? I knew that. I could tell. I could hardly believe what I saw in the darkest corner of the room. Suddenly lighter, from the candles last dying flame came a little burst of light. As if saying don't forget me, I am still here. Do candles really burn brighter just before they retire? I was actually speaking out aloud all that I had said before. To this women. She had been in the darkest corner all along. Silent. Watching. Was she the child's mother? My mouth won't open at first, then no sound, but finally. "Are you this child's mother? Nothing! I look back at the simple mess in my arms. Beginning to slip through. My eyes a thousand fathoms deep. I can't hold on any longer! Out the candle goes.....
Jason
(C) JPT 2007
Is it a woman or a child? Definitely female. Shiny hair tied back in a little pony tail. Dressed in an old Victorian, thin & worn dirty dress. Still pretty. Pretty still. Very still. This deathly figure lying on her side, serene, at peace. Too far past tired to wake. Was she facing slightly away from me or was I standing just slightly behind her, not wanting the full sight? For I knew she was dead. Far too tired I said. The innocence of yawning a ghost in the past. Someone must know her past. She was dead. I could see that. The candle in the corner of the room was following suit. Flickering it's final flames. Soon it will be dark in here. Was she growing out from the mattress or falling into it? She was stuck halfway, frozen. I tried to move around her. The porcelain skin cheeks. Or was it wax? Almost invisible light blue veins. Her mouth was home to her thumb. Her pale grey eyelids were as still as a sea of years worn granite. Thumb & mouth fused together, airtight. The soft knuckle of her index finger fast asleep tight against her 'Where angels did shush'. Nostrils blocked with soot or dust. Black. Closer. I need to hold. Comfort. For me. One step and I almost fall over her tiny whisper of a body. It was a child afterall. Too close now I stepped back to see. Out stretched arms to scoop up this tiny human puddle. Fused to the mattress. Difficulties lie ahead. I had to tear that poor child from her rotten putrid sheets. At arms reach still, I pause and wonder. If this is right. Afraid of the closeness I shudder with guilt and curiosity. My hands and forearms are wet from her putrification. Her stench unbearable but I am strong. I must stay strong. The stain on the sheets penetrate deep into her mattress. Her final sleeping place. Her best one. Ever. The happily tired, but calm looking expression on her face tells me all I need to know. I want to bend my arms. Bring her closer to me and bury my face. Hide. I need to cry into something. I just can't bring myself too near. What am I afraid of? But I feel so sorry for her. I imagine her tummy gently rise and fall. My arms are locked out straight. Can I hear air? The almost indistinguishable hiss of air through tiny nostrils. Just the radiator. Is she dead? She is dead isn't she? I knew that. I could tell. I could hardly believe what I saw in the darkest corner of the room. Suddenly lighter, from the candles last dying flame came a little burst of light. As if saying don't forget me, I am still here. Do candles really burn brighter just before they retire? I was actually speaking out aloud all that I had said before. To this women. She had been in the darkest corner all along. Silent. Watching. Was she the child's mother? My mouth won't open at first, then no sound, but finally. "Are you this child's mother? Nothing! I look back at the simple mess in my arms. Beginning to slip through. My eyes a thousand fathoms deep. I can't hold on any longer! Out the candle goes.....
Jason
(C) JPT 2007
Saturday, January 20, 2007
"Yesterday's Pornography #3"
Box Hill Cows & Me, April 2006.
Firstly....(this is me talking......now by the way)
Bloody right arm is playing me up! The elbow!! Went out up to the Hills for a few hours with Lee in the rain and dark Friday night (last night). That probably didn't help much. Met a bloke from Peaslake (lucky bastard) who told us about a mountain biker who died up there a while ago! Did a drop in that was......well.......too steep! And Lee learned in the week since our visit there on Sunday that on the Saturday before a bloke smahed his face in on a tree whilst attempting the drop-ins we were at on Sunday........I saw the video....not nice! Our ride tonight was good though......bloody warm! 14 degrees.....thats not normal is it? They reckon it will be freezing by late next week. About time too!
Got another coldsore breaking through on my bottom lip too.
Oh, and I got some "tree" debris caught in my rear derailleur and bent the hanger! It still works, but needs replacing. There was sooo much rubbish lying around from the storm yesterday! Branches and stuff all over the place. Even driving there we came across a few trees on the roadside that had been turned into neat piles of firewood by chainsaw. Another tree down one of the tiny, narrow country lanes near Peaslake was spanning the entire road. You could see the fresh yellow insides of the tree where it had split! Luckily it was high enough for us to drive (& the bikes;) underneath safely.
Now for my pre-blog diary...
So here it is.........the third instalment in my "Yesterday's Pornography" series. I do hope you like the cows in the photo. It was quite unverving passing them by.......they didn't leave much room. They didn't even bat an eyelid either;) I can't wait for the spring to arrive again. Just around the corner:) I can smell those cows already;)
Enjoy...
Written @ 15:17pm Saturday 8th April 2006 (two days after my 7th Interferon injection);
Alright! RFH yesterday, had to get the train to Waterloo and then catch the Northern Line all the way to Belsize Park underground station and back again later! The Silver Link direct from Richmond was not running for some reason.
Anyway, blood results, liver results good again but white cells or something have gone bad & they kept me hanging around to check the blood results straight away to decide wether or not to reduce my dose or not. They looked at the new results and compared them with my bloods from two weeks ago and they weren't any worse and told to continue as usual and would see what next fortnights results are up to. They said that while my white blood cells are bad I am more prone to infection and bleeding! So I have to be really careful and they told me to come up immediately if I suspect that I have a chest infection! And to keep a close check on my temperature also......38 or higher. I felt fine and was quite surprised by the results. I feel completely normal if a little fluey perhaps. Nothing to cry about mind.
Lee came around last night and we just chatted. My ankle hurt too much to go hiking! Today is the Grand national. Tarn, Millie, Daisy, Naif & Mum have gone to a model village in Amersham. I am popping round to my Mums later for dinner.
Written @ 14:34pm Sunday 9th April 2006;
My back hurts & my right wrist too. My right eye on the top lid has a stye or something irritating a bit. Going to Tescos soon with Mum. I have been watching the golf on TV in Augusta Georgia. I drove through there with Claire a few times going from Atlanta to Charleston SC & back again. I Love driving Claires car. She used to fall asleep while I did my best trying to not get lost or arrested..........speeding;)
Written @ 12:38pm Friday 14th April 2006 (Good Friday);
My back is better, but my wrist is still weak! I think I may have strained it whilst lifting weights at the gym. My Mum got her new bike yesterday from "Moorbros" cycles in Twickenham. A silver "Giant" Expression £200 with a nice wicker basket.......not;) We rode from the shop to Tania's and it was very windy! We saw Millie & she made me a fake sausage sandwich out of her plastic sandwich making kit:) I took Daisy & her friend to another of her friends in Wensleydale Road, Hampton.
Lee cut my hair for me last night. Evie isn't sleeping well! I went to the gym yesterday too. Played golf over at my Dads again and won again. The stye on my eye seems to have gone.
Claire is working with the girl scouts which she is enjoying. I had my 8th Interferon Injection last night at 23:27pm.
Jac had her hair coloured yesterday & she wants food today!
Going for a bike ride on Monday with Lee, Mat & Martin. Box Hill to Betchworth Quarry (where "Blake's 7" & and "Dr Who" have been filmed in the past) and back again.
Oh, on Tania's Birthday, Tarn Millie Mum & I went to Kingston. Tania was looking for some trainers. When she eventually found some I paid for them as a gift. I got Millie some bubbles too:)
Also I got a front derailleur for "Dessret Storm" for £20 fitted. Got myself a new rear tyre as mine is going bald!
Written @ 17:30pm Saturday 15th April 2006;
Watch yer cock! Saw my friend jac yesterday afternoon. Had a Subway each in Twickenham then got a lolly down by the river near Marble Hill House. Then we walked around Shacklegate Lane cemetery. Just to have a look at the graves. We saw the barman from "Only Fools & Horses" (Kenneth Macdonald). I used to see him in my local building society.
There was a small section for dead babies which was very sad to see! Then Jac had a 1/4 lb'er from Wimpy in Teddington. Then I popped round to Tania's to give Millie her easter egg & card because I won't see them on Sunday. They are going to the seaside.
Mark & Ria are back from Cuba. I put on my new tyre this afternoon. I am going to see my Mum later for food.
I got a nice card from Debbie thanking me for the loan of two Douglas Adams books, which she Loved.
I watched "The Empire Strikes back" last night and still enjoy it:)
Written @ 13:27pm Wednesday 19th April 2006 (the day before my 9th Interferon injection);
Went to the gym on Sunday with Jac. Had Subway on our way home.
On Monday Lee, Mat, Martin & I went for a cycle ride and had a great 3 hours of off-road mountain biking. Mat fell off once & Martin twice! They both seem ok but they were pretty nasty falls! Martin's cap was knocked off of one of his teeth! (Mat actually broke a rib in his fall and recovered in about 4-5 weeks. He didn't realise until the next day when he couldn't actually move!)
We found a dead badger and came across a whole bunch of Cows blocking the trail (see photo above). They were just sat in the middle of the track resting:) Martin got a puncture right at the end of our ride. I nearly fell off too, right near the quarry! I lost my footing on my pedals but was lucky enough (if you can call it lucky;) to land on the cross bar on my nut's! The main thing is here is that I stayed on the bike!
Went to gym yesterday & then to Tescos with Mum, who was knackered from tidying up her garden all day on Monday! She really Loves her new bike too! I am so glad she is ok on it.
Claire's Buick keeps on breaking down. I rang last night but she was stuck in her local "Kroger" car park phoning AAA.
My lip blister is still there but not any worse. I am due up at the RFH on Friday (the day after my 9th Interferon Injection). I hope my bloods are ok! Apart from the blister thingy on my lip I feel great. My Knuckles seem to be fine now.
See you next time...
Jason
(C) JPT 2007
Firstly....(this is me talking......now by the way)
Bloody right arm is playing me up! The elbow!! Went out up to the Hills for a few hours with Lee in the rain and dark Friday night (last night). That probably didn't help much. Met a bloke from Peaslake (lucky bastard) who told us about a mountain biker who died up there a while ago! Did a drop in that was......well.......too steep! And Lee learned in the week since our visit there on Sunday that on the Saturday before a bloke smahed his face in on a tree whilst attempting the drop-ins we were at on Sunday........I saw the video....not nice! Our ride tonight was good though......bloody warm! 14 degrees.....thats not normal is it? They reckon it will be freezing by late next week. About time too!
Got another coldsore breaking through on my bottom lip too.
Oh, and I got some "tree" debris caught in my rear derailleur and bent the hanger! It still works, but needs replacing. There was sooo much rubbish lying around from the storm yesterday! Branches and stuff all over the place. Even driving there we came across a few trees on the roadside that had been turned into neat piles of firewood by chainsaw. Another tree down one of the tiny, narrow country lanes near Peaslake was spanning the entire road. You could see the fresh yellow insides of the tree where it had split! Luckily it was high enough for us to drive (& the bikes;) underneath safely.
Now for my pre-blog diary...
So here it is.........the third instalment in my "Yesterday's Pornography" series. I do hope you like the cows in the photo. It was quite unverving passing them by.......they didn't leave much room. They didn't even bat an eyelid either;) I can't wait for the spring to arrive again. Just around the corner:) I can smell those cows already;)
Enjoy...
Written @ 15:17pm Saturday 8th April 2006 (two days after my 7th Interferon injection);
Alright! RFH yesterday, had to get the train to Waterloo and then catch the Northern Line all the way to Belsize Park underground station and back again later! The Silver Link direct from Richmond was not running for some reason.
Anyway, blood results, liver results good again but white cells or something have gone bad & they kept me hanging around to check the blood results straight away to decide wether or not to reduce my dose or not. They looked at the new results and compared them with my bloods from two weeks ago and they weren't any worse and told to continue as usual and would see what next fortnights results are up to. They said that while my white blood cells are bad I am more prone to infection and bleeding! So I have to be really careful and they told me to come up immediately if I suspect that I have a chest infection! And to keep a close check on my temperature also......38 or higher. I felt fine and was quite surprised by the results. I feel completely normal if a little fluey perhaps. Nothing to cry about mind.
Lee came around last night and we just chatted. My ankle hurt too much to go hiking! Today is the Grand national. Tarn, Millie, Daisy, Naif & Mum have gone to a model village in Amersham. I am popping round to my Mums later for dinner.
Written @ 14:34pm Sunday 9th April 2006;
My back hurts & my right wrist too. My right eye on the top lid has a stye or something irritating a bit. Going to Tescos soon with Mum. I have been watching the golf on TV in Augusta Georgia. I drove through there with Claire a few times going from Atlanta to Charleston SC & back again. I Love driving Claires car. She used to fall asleep while I did my best trying to not get lost or arrested..........speeding;)
Written @ 12:38pm Friday 14th April 2006 (Good Friday);
My back is better, but my wrist is still weak! I think I may have strained it whilst lifting weights at the gym. My Mum got her new bike yesterday from "Moorbros" cycles in Twickenham. A silver "Giant" Expression £200 with a nice wicker basket.......not;) We rode from the shop to Tania's and it was very windy! We saw Millie & she made me a fake sausage sandwich out of her plastic sandwich making kit:) I took Daisy & her friend to another of her friends in Wensleydale Road, Hampton.
Lee cut my hair for me last night. Evie isn't sleeping well! I went to the gym yesterday too. Played golf over at my Dads again and won again. The stye on my eye seems to have gone.
Claire is working with the girl scouts which she is enjoying. I had my 8th Interferon Injection last night at 23:27pm.
Jac had her hair coloured yesterday & she wants food today!
Going for a bike ride on Monday with Lee, Mat & Martin. Box Hill to Betchworth Quarry (where "Blake's 7" & and "Dr Who" have been filmed in the past) and back again.
Oh, on Tania's Birthday, Tarn Millie Mum & I went to Kingston. Tania was looking for some trainers. When she eventually found some I paid for them as a gift. I got Millie some bubbles too:)
Also I got a front derailleur for "Dessret Storm" for £20 fitted. Got myself a new rear tyre as mine is going bald!
Written @ 17:30pm Saturday 15th April 2006;
Watch yer cock! Saw my friend jac yesterday afternoon. Had a Subway each in Twickenham then got a lolly down by the river near Marble Hill House. Then we walked around Shacklegate Lane cemetery. Just to have a look at the graves. We saw the barman from "Only Fools & Horses" (Kenneth Macdonald). I used to see him in my local building society.
There was a small section for dead babies which was very sad to see! Then Jac had a 1/4 lb'er from Wimpy in Teddington. Then I popped round to Tania's to give Millie her easter egg & card because I won't see them on Sunday. They are going to the seaside.
Mark & Ria are back from Cuba. I put on my new tyre this afternoon. I am going to see my Mum later for food.
I got a nice card from Debbie thanking me for the loan of two Douglas Adams books, which she Loved.
I watched "The Empire Strikes back" last night and still enjoy it:)
Written @ 13:27pm Wednesday 19th April 2006 (the day before my 9th Interferon injection);
Went to the gym on Sunday with Jac. Had Subway on our way home.
On Monday Lee, Mat, Martin & I went for a cycle ride and had a great 3 hours of off-road mountain biking. Mat fell off once & Martin twice! They both seem ok but they were pretty nasty falls! Martin's cap was knocked off of one of his teeth! (Mat actually broke a rib in his fall and recovered in about 4-5 weeks. He didn't realise until the next day when he couldn't actually move!)
We found a dead badger and came across a whole bunch of Cows blocking the trail (see photo above). They were just sat in the middle of the track resting:) Martin got a puncture right at the end of our ride. I nearly fell off too, right near the quarry! I lost my footing on my pedals but was lucky enough (if you can call it lucky;) to land on the cross bar on my nut's! The main thing is here is that I stayed on the bike!
Went to gym yesterday & then to Tescos with Mum, who was knackered from tidying up her garden all day on Monday! She really Loves her new bike too! I am so glad she is ok on it.
Claire's Buick keeps on breaking down. I rang last night but she was stuck in her local "Kroger" car park phoning AAA.
My lip blister is still there but not any worse. I am due up at the RFH on Friday (the day after my 9th Interferon Injection). I hope my bloods are ok! Apart from the blister thingy on my lip I feel great. My Knuckles seem to be fine now.
See you next time...
Jason
(C) JPT 2007
The Mighty C say's go here for more.....
Pre-Blog Diary
Thursday, January 18, 2007
48th Interferon Injection & Still the Fat Lady sits in Silence...
Off scaring the gulls again...
Wow! What a windy day! Over ten people have died as a result of falling trees and lorry's being blown over on the motorways! Richmond Park & Bushy Park were closed due to the severe weather. Those parks are absolutely full of very old & rather large trees. I still went out this afternoon for over two hours on my bike. My goodness was it windy! I Loved being out in it....so exciting & fresh! Along the river on my way to Hampton Court Palace I came across a large tree that was completely stretched out across the path having fallen asleep. And then three more smaller trees further up. One tree I came across was still upright but down at the base you could see that it had been pushed slightly and the ground by the gravel path had been lifted about ten inches! I hung around for a while to see if it would fall.........it didn't. But you can bet your bottom dollar that it will be down tomorrow. I leant my bike up against it and got a photo. The last photo of that tree ever! I also saw a flock of Canadian Geese (probably the flock you saw UC) flying around in circles above the Palace. I imagine they had taken off not quite realising just how windy it was and were kinda stuck up there! They did look a little lost! The whole bike ride from beginning to end was littered with fallen branches. Good job I had a mountain bike then;)
That was earlier....... Right now I am Just preparing myself to take my 48th Interferon injection to rid myself of this Hep C. Up until quite recently this 48th injection was due to be my last one and then a week extra of Ribavirin. But as some of you already know, I inadvertently received two extra Interferon injections back on the 12th December and.....well.....I am taking these too. With absolutely nothing to loose and not wanting them to go to waste I will be using them up. Hopefully helping me get rid of this virus once and for all. My post tx bloods won't be affected. Actually I am due up sometime next week, the week of my 36th Birthday. I rang up about a week ago and they just said to come up any day during that week. I chose Monday 22nd Jan (I'm f****d if I am going up there on my Birthday;). I don't know how long the results will take to come back.......judging by my 12wk blood results.....about 3 weeks. And if all is well and the virus has gone and done a runner, then July's post-tx bloods will be the big one. But for now I will just be getting on with my treatment mini-extension and I expect that somewhere in the back of my mind I will be hoping for an "All clear" from the 22nd's bloods. I say "expect" just because it is something I don't normally think about. I will just get a phone call to either come up or they will tell me over the phone......actually, how do they do it? Do they tell you these kind's of results over the phone? I shouldn't have thought so. So a phone call for me to go up it will be then. I most certainly won't be waitng for the phone to ring but let me assure you, my train ride up once they do have the results to the RFH will be full of tension!
But as I said, in the meantime I will just continue to get on with my usual stuff, the extra two shots, cycling, the blog and trying to deal with the pain in my ankles (especially at night when I am trying to sleep). Oh....& trying to get to grips with my new digital camera (Canon Powershot G7). As you can see from the photo (first one from my new camera used in my blog) above I have been experimenting with it down by the river in Kingston. I took this photo of the young Swan yesterday afternoon.....I hope I've still got it;) All I can think is that the poor thing saw my ugly mush and decided to scarper pronto! I know exactly where he/she was going.......Bushy Park & Hampton Court Palace is just around the bend in the river (where I was cycling tonight)......a much more picturesque setting for a young Swan to spend his/her time and much less noisy too.
So, it looks like I won't be heading for the "Post Treatment Experience" section on the forum just yet. That won't be until the 8th Feb when I have taken my last Ribavirin tablets. There is no anti-climax thing going on here at all. I wasn't planning any parties or celebrations as such. Another couple of weeks will soon fly by, as all the other 48 have done so before. I honestly feel......physically this is......that I finished tx months ago. Although I am curious to know how I will feel once I have finished the drugs, I still think that I won't feel too many, if any differences at all. I have been one of the very luck few......& don't I know it! It pains me very much knowing just how many people are having a terrible time! It is my HIV drugs that affect me....did before treatment and during too. They didn't seem to get any worse nor do I expect them to go away once I am done with the Hep C stuff. Maybe they even helped me regarding just how little side effects I witnessed from the Hep C meds. Of course I shall never know, not unless I do the whole 48wks again but without my HIV meds & I don't think that will ever happen. The last time I saw the BBC news know one was saying they had found a cure for HIV;)
I was out at a restuarant with my friend Jac last night and as per usual around 21:15 my HIV drugs kicked in and we got talking about the way they make me feel. She asked me what I was feeling. I didn't even try to explain as I just cannot explain. When I have tried in the past, I just sound silly as I just find it so very difficult. I suppose I could look through the side effect leaflet that comes with my HIV meds but what would the point be? I'm not going to stop taking them.
Let's just say that the feeling they give me, both mental & physical are neither good nor bad. And I know it will go away by midnight too. That is all I can say really.
Injection time (be back in a few minutes)................all done! Just two more to go...
Before I go off to bed for some "Boosh" I just wanted to say hi to Mark from "The Redlands Trails" who commented on my Blog the other day. He helps maintain most of the trails that I frequent up in the Surrey Hills on my mountain bike. And also to say just how much your trails, especially BKB & Summer Lightning are appreciated. And there is one going right through the middle of Pitch Hill that I really enjoy also (don't know if it has a name).........Thanks guys.
Oh, I forgot to mention...........The hose pipe ban that was put in place back in April 2006 has been lifted as from 8am this morning. I have gotten quite used to using a bucket to wash my bike and car during the ban, but that hose pipe will come in handy on the days that my bike is particularly bad.........which is quite often. And "Celebrity Big Brother" that I have been enjoying since the first week in Jan is hotting up. I'd Love to know how I would fair inside the Big Brother house. Do you think they would let someone in there with my colourful range of health problems...........no, nor did I think so either;)
And also it looks as if I will get up to 60 days in the US instead of 30 soon according to the White House. Don't they realize that all I need to infect someone is just the one day? Sort it out Bush!
More news..........(Mailny so my post doen't end in the word BUSH;) - All last weekend & all this week I have had a moutful of ulcers! No sobad in it's self, because beleive me when I say they have been worse! But to top it all of I wake up with a "break-through" coldsore on my top lip! Christ that came up fast! They say that if you catch it when you first feel the tingling sensation wth Zovirax, that it should go very quickly...........Tingling? What tingling? The only tingling sensation was from a stray nose hair tickling the inside of my hooter;) Anyway.......it's covered with Zovirax now. Bastard things........you would think that I would be used to them having had millions of the buggers over the last 20 odd years. Mustn't grumble mind.......it could be cystitis or diarrhea!
(So what do I end the post with instead of Bush?.............There's no difference really;) (Let me apologize to any Bush Lovers out there;)
Jason
(C) JPT 2007
Wow! What a windy day! Over ten people have died as a result of falling trees and lorry's being blown over on the motorways! Richmond Park & Bushy Park were closed due to the severe weather. Those parks are absolutely full of very old & rather large trees. I still went out this afternoon for over two hours on my bike. My goodness was it windy! I Loved being out in it....so exciting & fresh! Along the river on my way to Hampton Court Palace I came across a large tree that was completely stretched out across the path having fallen asleep. And then three more smaller trees further up. One tree I came across was still upright but down at the base you could see that it had been pushed slightly and the ground by the gravel path had been lifted about ten inches! I hung around for a while to see if it would fall.........it didn't. But you can bet your bottom dollar that it will be down tomorrow. I leant my bike up against it and got a photo. The last photo of that tree ever! I also saw a flock of Canadian Geese (probably the flock you saw UC) flying around in circles above the Palace. I imagine they had taken off not quite realising just how windy it was and were kinda stuck up there! They did look a little lost! The whole bike ride from beginning to end was littered with fallen branches. Good job I had a mountain bike then;)
That was earlier....... Right now I am Just preparing myself to take my 48th Interferon injection to rid myself of this Hep C. Up until quite recently this 48th injection was due to be my last one and then a week extra of Ribavirin. But as some of you already know, I inadvertently received two extra Interferon injections back on the 12th December and.....well.....I am taking these too. With absolutely nothing to loose and not wanting them to go to waste I will be using them up. Hopefully helping me get rid of this virus once and for all. My post tx bloods won't be affected. Actually I am due up sometime next week, the week of my 36th Birthday. I rang up about a week ago and they just said to come up any day during that week. I chose Monday 22nd Jan (I'm f****d if I am going up there on my Birthday;). I don't know how long the results will take to come back.......judging by my 12wk blood results.....about 3 weeks. And if all is well and the virus has gone and done a runner, then July's post-tx bloods will be the big one. But for now I will just be getting on with my treatment mini-extension and I expect that somewhere in the back of my mind I will be hoping for an "All clear" from the 22nd's bloods. I say "expect" just because it is something I don't normally think about. I will just get a phone call to either come up or they will tell me over the phone......actually, how do they do it? Do they tell you these kind's of results over the phone? I shouldn't have thought so. So a phone call for me to go up it will be then. I most certainly won't be waitng for the phone to ring but let me assure you, my train ride up once they do have the results to the RFH will be full of tension!
But as I said, in the meantime I will just continue to get on with my usual stuff, the extra two shots, cycling, the blog and trying to deal with the pain in my ankles (especially at night when I am trying to sleep). Oh....& trying to get to grips with my new digital camera (Canon Powershot G7). As you can see from the photo (first one from my new camera used in my blog) above I have been experimenting with it down by the river in Kingston. I took this photo of the young Swan yesterday afternoon.....I hope I've still got it;) All I can think is that the poor thing saw my ugly mush and decided to scarper pronto! I know exactly where he/she was going.......Bushy Park & Hampton Court Palace is just around the bend in the river (where I was cycling tonight)......a much more picturesque setting for a young Swan to spend his/her time and much less noisy too.
So, it looks like I won't be heading for the "Post Treatment Experience" section on the forum just yet. That won't be until the 8th Feb when I have taken my last Ribavirin tablets. There is no anti-climax thing going on here at all. I wasn't planning any parties or celebrations as such. Another couple of weeks will soon fly by, as all the other 48 have done so before. I honestly feel......physically this is......that I finished tx months ago. Although I am curious to know how I will feel once I have finished the drugs, I still think that I won't feel too many, if any differences at all. I have been one of the very luck few......& don't I know it! It pains me very much knowing just how many people are having a terrible time! It is my HIV drugs that affect me....did before treatment and during too. They didn't seem to get any worse nor do I expect them to go away once I am done with the Hep C stuff. Maybe they even helped me regarding just how little side effects I witnessed from the Hep C meds. Of course I shall never know, not unless I do the whole 48wks again but without my HIV meds & I don't think that will ever happen. The last time I saw the BBC news know one was saying they had found a cure for HIV;)
I was out at a restuarant with my friend Jac last night and as per usual around 21:15 my HIV drugs kicked in and we got talking about the way they make me feel. She asked me what I was feeling. I didn't even try to explain as I just cannot explain. When I have tried in the past, I just sound silly as I just find it so very difficult. I suppose I could look through the side effect leaflet that comes with my HIV meds but what would the point be? I'm not going to stop taking them.
Let's just say that the feeling they give me, both mental & physical are neither good nor bad. And I know it will go away by midnight too. That is all I can say really.
Injection time (be back in a few minutes)................all done! Just two more to go...
Before I go off to bed for some "Boosh" I just wanted to say hi to Mark from "The Redlands Trails" who commented on my Blog the other day. He helps maintain most of the trails that I frequent up in the Surrey Hills on my mountain bike. And also to say just how much your trails, especially BKB & Summer Lightning are appreciated. And there is one going right through the middle of Pitch Hill that I really enjoy also (don't know if it has a name).........Thanks guys.
Oh, I forgot to mention...........The hose pipe ban that was put in place back in April 2006 has been lifted as from 8am this morning. I have gotten quite used to using a bucket to wash my bike and car during the ban, but that hose pipe will come in handy on the days that my bike is particularly bad.........which is quite often. And "Celebrity Big Brother" that I have been enjoying since the first week in Jan is hotting up. I'd Love to know how I would fair inside the Big Brother house. Do you think they would let someone in there with my colourful range of health problems...........no, nor did I think so either;)
And also it looks as if I will get up to 60 days in the US instead of 30 soon according to the White House. Don't they realize that all I need to infect someone is just the one day? Sort it out Bush!
More news..........(Mailny so my post doen't end in the word BUSH;) - All last weekend & all this week I have had a moutful of ulcers! No sobad in it's self, because beleive me when I say they have been worse! But to top it all of I wake up with a "break-through" coldsore on my top lip! Christ that came up fast! They say that if you catch it when you first feel the tingling sensation wth Zovirax, that it should go very quickly...........Tingling? What tingling? The only tingling sensation was from a stray nose hair tickling the inside of my hooter;) Anyway.......it's covered with Zovirax now. Bastard things........you would think that I would be used to them having had millions of the buggers over the last 20 odd years. Mustn't grumble mind.......it could be cystitis or diarrhea!
(So what do I end the post with instead of Bush?.............There's no difference really;) (Let me apologize to any Bush Lovers out there;)
Jason
(C) JPT 2007
The Mighty C say's go here for more.....
Interferon Injection
Wednesday, January 17, 2007
Over & Over We Die One After the Other...
Waterloo, London. (now demolished)
I found myself up high inside a building with large clear windows set in brilliant white walls. There were faint but obvious nurse like beings in my peripheral vision. The floor was thickly carpeted and dirty. Plenty of light filled the small corridor I was currently shuffling towards at the far end of the room. With just one thing in my thoughts that ate away at my insides like a hungry fire...........I had come here to die! I was dying! I had just minutes of my life left to live & I was here to say goodbye! My Mum was there by the entrance to the corridor. She had been waiting for me. Face down now & unable to look up I approached the corridor. My Mum followed me behind. I noticed the floor of which was made up of a gentle slope not unlike a wheelchair ramp. I used the metal hand rails on each side of the narrow passage to help me up into what turned out to be the very top floor of the building. The nurse-like beings stayed behind at the bottom of the slope. This new room was even brighter than the one from which I had just left. I saw an excersise bike by one of the large windows that covered the walls. There was a woman sitting on it. She was unfamiliar to me. She was pedaling along and almost out of breath. She looked very ill and I had to look away.
I could see the wind was blowing hard from the way the leaves scratched their pathetic little lives across the sodden ground outside from which they had been born. It was bright and damp out. The room was filled with a fresh draft that was coming in through one of the windows. In the middle of the room was what looked like a lift shaft enclosed inside four concrete walls. The lift was not in use. I noticed that one of the windows overlooking the leafy dance floor outside stretched from the ceiling right down the wall and ended at the thick dirty carpet. The excersise bike was set right next to the window. The woman on the bike had gone now. She had died. I didn't notice where she had been taken........she just wasn't there anymore. There were dead leaves piled up at the base of the exercise machine. I could smell the decay of the little damp pile. As I approached the bike I showed my Mum a knot tied in the waist of my pyjamas and as I fumbled around with the knot I told my Mum that all I had to do was pull on it and I could go now......be dead.....gone.
I decided to hang on a little while so I could at least say goodbye properly. I climbed onto the bike and felt the saddle was still a little warm from the strange woman before. The grips were warm & sticky too. The glassless window by my side seemed much larger than it was and my stomach was filled with heavily depressed butterflies. I began to pedal. I found it very hard going and noticed that my teeth were beginning to fall out and fill my mouth with rotten fragments. My Mum asked me if I wanted a drink of alcohol. She said it would be fine to drink as I would be gone soon. I said yes, I would like a drink. I felt with my tongue that my teeth were crumbling inside my liquid filled mouth. I started to spit them out onto the floor........I had no more room inside my mouth for them. My Mum bent down and picked up the wet bubble soaked chunks. As she sorted through them cupped inside her palm with her fingertips, she said that they weren't my teeth! Then I noticed that indeed they weren't my teeth, as I could now feel my teeth in the space where the rotten ones were. I continued to cycle but just couldn't match the previous womans speed or distance! I would now die as a result of this failure! My heart sank down through the building and through thousands of miles of rock and lava to the center of the earth! I climbed off the bike and stood by my Mums side and I put my hand in hers and I said - "I will be gone in a minute Mummy". I didn't take my eyes off the dark, garish pattern printed into the carpet.
We were both very sad and the pain in out chests excruciatingly permanent. I cried, my face contorted into some kind of agonising pre-death mask and said that I wanted to go now. Hand in hand my Mum walked by my side as I shuffled over to the opposite side of the room past the central column. It turned out to be a mirror image of the side of the room I had just left. The bike, window & the leaves were all present. There was even a little pile of broken teeth on the carpet at the foot of the exercise bike. To my great astonishment my youngest Sister Tania was sitting in a small chair by the bike and the glassless window. Leaves around her bare feet covering her toes. I was very surprised to see her here and shuffled up to her and said that I was ready now. I also explained to her, as I shuffled into place under the window, that I was just here with Mummy telling her about the knot on my pyjama bottoms and all I had to do was pull on it and I would be gone. I found myself crying even more and wailed like a child crying in their sleep. I think I pulled the knot...
Jason
(C) JPT 2007
I found myself up high inside a building with large clear windows set in brilliant white walls. There were faint but obvious nurse like beings in my peripheral vision. The floor was thickly carpeted and dirty. Plenty of light filled the small corridor I was currently shuffling towards at the far end of the room. With just one thing in my thoughts that ate away at my insides like a hungry fire...........I had come here to die! I was dying! I had just minutes of my life left to live & I was here to say goodbye! My Mum was there by the entrance to the corridor. She had been waiting for me. Face down now & unable to look up I approached the corridor. My Mum followed me behind. I noticed the floor of which was made up of a gentle slope not unlike a wheelchair ramp. I used the metal hand rails on each side of the narrow passage to help me up into what turned out to be the very top floor of the building. The nurse-like beings stayed behind at the bottom of the slope. This new room was even brighter than the one from which I had just left. I saw an excersise bike by one of the large windows that covered the walls. There was a woman sitting on it. She was unfamiliar to me. She was pedaling along and almost out of breath. She looked very ill and I had to look away.
I could see the wind was blowing hard from the way the leaves scratched their pathetic little lives across the sodden ground outside from which they had been born. It was bright and damp out. The room was filled with a fresh draft that was coming in through one of the windows. In the middle of the room was what looked like a lift shaft enclosed inside four concrete walls. The lift was not in use. I noticed that one of the windows overlooking the leafy dance floor outside stretched from the ceiling right down the wall and ended at the thick dirty carpet. The excersise bike was set right next to the window. The woman on the bike had gone now. She had died. I didn't notice where she had been taken........she just wasn't there anymore. There were dead leaves piled up at the base of the exercise machine. I could smell the decay of the little damp pile. As I approached the bike I showed my Mum a knot tied in the waist of my pyjamas and as I fumbled around with the knot I told my Mum that all I had to do was pull on it and I could go now......be dead.....gone.
I decided to hang on a little while so I could at least say goodbye properly. I climbed onto the bike and felt the saddle was still a little warm from the strange woman before. The grips were warm & sticky too. The glassless window by my side seemed much larger than it was and my stomach was filled with heavily depressed butterflies. I began to pedal. I found it very hard going and noticed that my teeth were beginning to fall out and fill my mouth with rotten fragments. My Mum asked me if I wanted a drink of alcohol. She said it would be fine to drink as I would be gone soon. I said yes, I would like a drink. I felt with my tongue that my teeth were crumbling inside my liquid filled mouth. I started to spit them out onto the floor........I had no more room inside my mouth for them. My Mum bent down and picked up the wet bubble soaked chunks. As she sorted through them cupped inside her palm with her fingertips, she said that they weren't my teeth! Then I noticed that indeed they weren't my teeth, as I could now feel my teeth in the space where the rotten ones were. I continued to cycle but just couldn't match the previous womans speed or distance! I would now die as a result of this failure! My heart sank down through the building and through thousands of miles of rock and lava to the center of the earth! I climbed off the bike and stood by my Mums side and I put my hand in hers and I said - "I will be gone in a minute Mummy". I didn't take my eyes off the dark, garish pattern printed into the carpet.
We were both very sad and the pain in out chests excruciatingly permanent. I cried, my face contorted into some kind of agonising pre-death mask and said that I wanted to go now. Hand in hand my Mum walked by my side as I shuffled over to the opposite side of the room past the central column. It turned out to be a mirror image of the side of the room I had just left. The bike, window & the leaves were all present. There was even a little pile of broken teeth on the carpet at the foot of the exercise bike. To my great astonishment my youngest Sister Tania was sitting in a small chair by the bike and the glassless window. Leaves around her bare feet covering her toes. I was very surprised to see her here and shuffled up to her and said that I was ready now. I also explained to her, as I shuffled into place under the window, that I was just here with Mummy telling her about the knot on my pyjama bottoms and all I had to do was pull on it and I would be gone. I found myself crying even more and wailed like a child crying in their sleep. I think I pulled the knot...
Jason
(C) JPT 2007
Monday, January 15, 2007
My First Foursome...
Sunday 14th Jan 07 (I'm the one on the far left).
...this year.
Before you get too excited, I am talking about a cycling foursome;)
Lee & I & Lee's boss Martin and work mate Mat all met down Peaslake Village for a spot of mountain biking. The sun was out all day, it was mild and not too much mud either. There were a few clouds, but this is England;) I was a little apprehensive going with Martin & Mat.........let me explain. The last time we all went out together Mat broke a rib in coming off his bike and Martin split his head open like wise. This was about 6 months ago. Mat went out once more with us after his recovery. But today was the first time Martin went out since busting his head open. In all fairness they both did very well considering. If Lee & I hadn't been out on our bikes for 6 months we would have died today! We stopped a few more times than normal.
It was a great day though. Just never know if anyone is going to take a tumble. Martin did manage to fall off halfway down Barry Knows Best but survived to tell the tale;) Nice one Martin & Mat.........you did really well. In another six months then;)
It was quite refreshing to be honest, going round at someone elses pace. Saw an awful lot more scenery. Same as usual but more. Right up on the summit of Pitch Hill walked past a lone mountain biker pushing his beloved bike along up on it's back wheel. His front wheel was pretty buckled and his forks were bent! He was fine and nodded so to us. Judging by the direction he was walking in he had a pretty fair distance to the carpark!.......That's mountain biking:) Lee & I knew exactly where he had just come from......where we were heading oursleves. A pretty steep drop in that once we were there ourselves Lee was the only one to do it. What a hero;) I did it last time we were there but even then I nearly crashed into a tree at 30 mph! On another track a couple of mountain bikers asked me if I had lost a digital speedometer. I hadn't. We're like one big family up there, unlike Richmond Park where they are all a bit snooty!. I still feel like I have worked hard though so I can only imagine how the others will be feeling today!
Nearly got my car stuck in the carpark! I got there at 11:30am and the normally empty carpark was full! Even on a good day in the summer there are always spaces. It was full of mountain bikers and their cars & 4 by 4's. I got the last chicken on the shelf so to speak and it was in 6 inches of mud! The tiny village triangle was packed with cyclists, a large group of elderly ramblers, a dog and two horses and one or two very annoyed locals;) You can just imagine a quiet tiny English country village absolutely packed with muddy cyclists blocking the road.
I managed to get my car out in the end. Was wondering all afternoon wether I would. I stuck the auto over into semi and selected 3rd gear and slowly but surely the car moved. My car needs new tyres..........and a wash!
My bike was great as usual. It does amaze me at the sheer amount of battering that bike takes! The more battering the bike gets the less I do.....that's fine with me:)
I will be interested to see how my body reacts to not being on tx. This week, Thursday in fact, will see the last of my 48 Interferon injections. Actually, I was not sure wether to mention this or not as I didn't want to make it sound like some big deal because it's not but I have thought about it and have decided to mention it. I will be doing 50wks of tx. The only and I stress the only reasons being are a) I was given two too many injections and b) I am tolerating the tx very well c) The injections would only go in the bin if I took them back to the RFH and d) I would absolutely hate myself if I didn't use them and my virus came back. There, I said it. Wether it is right or wrong to use them I am going to use them. No, they most probably won't make any difference being just the two and all, but who really knows eh.......those two extra weeks could make a difference. If they weren't there in my fridge I would not even be thinking about them.
My miniscule tx extention will not effect my bloods due on the 22nd Jan. I finish my 48th on the 18th. But it may effect the 6 month post bloods. I will never know, but what would you do with two extra injections sitting by the grapes in your fridge and you were tolerating tx?..........Exactly.
Jason
(C) JPT 2007
...this year.
Before you get too excited, I am talking about a cycling foursome;)
Lee & I & Lee's boss Martin and work mate Mat all met down Peaslake Village for a spot of mountain biking. The sun was out all day, it was mild and not too much mud either. There were a few clouds, but this is England;) I was a little apprehensive going with Martin & Mat.........let me explain. The last time we all went out together Mat broke a rib in coming off his bike and Martin split his head open like wise. This was about 6 months ago. Mat went out once more with us after his recovery. But today was the first time Martin went out since busting his head open. In all fairness they both did very well considering. If Lee & I hadn't been out on our bikes for 6 months we would have died today! We stopped a few more times than normal.
It was a great day though. Just never know if anyone is going to take a tumble. Martin did manage to fall off halfway down Barry Knows Best but survived to tell the tale;) Nice one Martin & Mat.........you did really well. In another six months then;)
It was quite refreshing to be honest, going round at someone elses pace. Saw an awful lot more scenery. Same as usual but more. Right up on the summit of Pitch Hill walked past a lone mountain biker pushing his beloved bike along up on it's back wheel. His front wheel was pretty buckled and his forks were bent! He was fine and nodded so to us. Judging by the direction he was walking in he had a pretty fair distance to the carpark!.......That's mountain biking:) Lee & I knew exactly where he had just come from......where we were heading oursleves. A pretty steep drop in that once we were there ourselves Lee was the only one to do it. What a hero;) I did it last time we were there but even then I nearly crashed into a tree at 30 mph! On another track a couple of mountain bikers asked me if I had lost a digital speedometer. I hadn't. We're like one big family up there, unlike Richmond Park where they are all a bit snooty!. I still feel like I have worked hard though so I can only imagine how the others will be feeling today!
Nearly got my car stuck in the carpark! I got there at 11:30am and the normally empty carpark was full! Even on a good day in the summer there are always spaces. It was full of mountain bikers and their cars & 4 by 4's. I got the last chicken on the shelf so to speak and it was in 6 inches of mud! The tiny village triangle was packed with cyclists, a large group of elderly ramblers, a dog and two horses and one or two very annoyed locals;) You can just imagine a quiet tiny English country village absolutely packed with muddy cyclists blocking the road.
I managed to get my car out in the end. Was wondering all afternoon wether I would. I stuck the auto over into semi and selected 3rd gear and slowly but surely the car moved. My car needs new tyres..........and a wash!
My bike was great as usual. It does amaze me at the sheer amount of battering that bike takes! The more battering the bike gets the less I do.....that's fine with me:)
I will be interested to see how my body reacts to not being on tx. This week, Thursday in fact, will see the last of my 48 Interferon injections. Actually, I was not sure wether to mention this or not as I didn't want to make it sound like some big deal because it's not but I have thought about it and have decided to mention it. I will be doing 50wks of tx. The only and I stress the only reasons being are a) I was given two too many injections and b) I am tolerating the tx very well c) The injections would only go in the bin if I took them back to the RFH and d) I would absolutely hate myself if I didn't use them and my virus came back. There, I said it. Wether it is right or wrong to use them I am going to use them. No, they most probably won't make any difference being just the two and all, but who really knows eh.......those two extra weeks could make a difference. If they weren't there in my fridge I would not even be thinking about them.
My miniscule tx extention will not effect my bloods due on the 22nd Jan. I finish my 48th on the 18th. But it may effect the 6 month post bloods. I will never know, but what would you do with two extra injections sitting by the grapes in your fridge and you were tolerating tx?..........Exactly.
Jason
(C) JPT 2007
The Mighty C say's go here for more.....
Mountain Biking
Saturday, January 13, 2007
"Cometh the Butterfly"
Teddington, June 2004.
The sky became heavy, less in their dreams,
The air that they breathe had set solid it seems.
Where once there were clouds all white and bright,
Now replaced by rocks disturbing their flight,
Of freedom & space for your friends of the wing,
Where nothing can fly & be free & sing.
These lands were once rife with the fluttering by,
Of tiny bodies dancing to please your eye,
For their time in the air, these innocent beings,
Have all but died, gasping with meaning,
All before them has decided that black,
Is better for them as they find their way back,
To a land of Love and laughter & smiles,
Colourful, radiant & covered in miles,
Of sky that befriends them & sees them well,
In a blanket of warmth & of fragrance to smell,
To remind them where home is, their living places,
Where tears run happy down over their faces.
A place they are free & unburdened with weight,
An earth with no fences, no locks, no gate.
No rocks to be seen nor sky covered dark,
Where butterflies dance for you, fly free in the park.
Jason
(C) JPT 2007
The sky became heavy, less in their dreams,
The air that they breathe had set solid it seems.
Where once there were clouds all white and bright,
Now replaced by rocks disturbing their flight,
Of freedom & space for your friends of the wing,
Where nothing can fly & be free & sing.
These lands were once rife with the fluttering by,
Of tiny bodies dancing to please your eye,
For their time in the air, these innocent beings,
Have all but died, gasping with meaning,
All before them has decided that black,
Is better for them as they find their way back,
To a land of Love and laughter & smiles,
Colourful, radiant & covered in miles,
Of sky that befriends them & sees them well,
In a blanket of warmth & of fragrance to smell,
To remind them where home is, their living places,
Where tears run happy down over their faces.
A place they are free & unburdened with weight,
An earth with no fences, no locks, no gate.
No rocks to be seen nor sky covered dark,
Where butterflies dance for you, fly free in the park.
Jason
(C) JPT 2007
Thursday, January 11, 2007
47th Injection & Cool Dark Places...
One medium potato......tonight.
Just the one injection left now. I am going to miss those little pricks;) Ok, maybe not the pricks, but definitely the late Thursday night routine that is firstly to follow the sounds of my mobile phone and changing the alarm set to 23:15 (from 20:27 previously) to 23:27 then taking out from my fridge the little syringe full of Interferon a needle & a Sterit. I walk back into the living room and place it on the arm of my sofa and wait (usually in front of my trusty Mac)) until the alarm goes off again. The next thing is to change the alarm now to 08:27 for my morning pills. Now with my injection at a suitable room temperature the thing is ready to inject. Sat on either the arm or the long back of my sofa now (on which side depends which side of my body is due for injecting) The area of skin on my side (Love handle basically) is swabbed and left to dry for a few seconds while I attatch the needle to the tiny syringe. I might also add that I always inject topless (calm down ladies;) as it is so much easier without a shirt or something draping in the way. I pinch about an inch of flesh between my thumb & index finger and gently slide the needle at a 45 degree angle into the scampi sized lump. No pain.......it's quite interesting watching the needle disappear the way it does......all the way in until I can't see any metal at all. Then in goes the pretty red plunger, quite slowly (probably about 10 seconds) all the Interferon is invited into my body. Everything and including the air is now inside me. I leave the needle in there for another 10 seconds then pull it all out. With no blood or mark for that matter, I stand up and go back to the kitchen and mark the syringe with the number that it was (47 in this case) and pop it into the box in the cupboard with the other 46.
That's it.
What will I do now? Oh Thursday nights, what will I do?............Exactly....nothing;) Sitting on my computer I expect, writing a post or poem maybe for on here or perhaps checking out the Forum to see what's going on there. Oh, and not forgetting my dreams too. Whatever I will be doing, at least I know that I will feel the same as I always do at this time of day. I can never really explain the way I feel, but when I tried to with my Sister Tania once she said that from what I had said it sounds like what it's like when you are on E. I have never done E but my Sister has in the past. Not a good drug at all!
I know why I feel like this. My HIV drugs are to blame but these feelings are tolerable and I know they will go away by about midnight. It happens just in the evening too. I take a slightly different cocktail in the morning, plus right after my AM pills I go straight back to sleep. I have been getting these feelings for several years now................I'm boring myself just even writing about it.
I was out on my bike last night, just a local ride. I was sitting at my desk playing around with a photo on Photoshop and POW! Power out! Nothing.........pitch bloody black! That's it I thought...........got out my torch and found all my cycling gear, put it on, grabbed my i-pod and went out for a ride (potatoes are fine during power outs; "Store in a cool dark place" is what it says on the bag, so I wasn't too worried about leaving them). It was quite exciting really. All the houses and flats between Kingston Bridge and Teddington Lock but inbetween Broom Rd and the Thames were without power! My lights are pretty good normally but being out in that kind of darkness was a little like being up in the Surrey Hills. Actually, I did notice that Teddington Studios had power and they are down the same road as me. It must be nice if you have your own back up power eh. Like me and my torch;)
Not a bad ride.........quick too & warm but getting cooler again........& about bloody time too! I was back home inside an hour and even when cycling past Teddington Lock & the studios (where "The Office" was filmed) I could see that the electricity was back on where I live. With my potatoes already at peace, I was too now knowing my Interferon & FactorVIII was ok.........& my humus (I'm back eating it again....a nice caralemized red onion flavour), chicken, grapes (they gotta be cold & crunchy like tiny little apples) and my blood red orange juice!
So on to today. Could this have been the most boring day in history since the potato was first invented?.......Let me explain. I have ordered a new digital camera from the internet and they said it will arrive either today or Friday (tomorrow). Well it didn't arrive today, so the whole day was wasted! Now I have the prospect of waiting in all day tomorrow too. Could Friday equal the potato? I do hope not. According to my "special" tracking number I have access to (via the internet) it was with DHL at a Paris airport around 22:36 tonight wating to be shipped out to Heathrow - right by where I live) What I really hope is that it arrives first thing in the morning...........hang on, no not first thing. Perhaps around 11am would be a better time. Before lunchtime anyway. It better be here before 7pm as I am going out to "The Hills" with Lee with our bikes (after a 22 mile drive that is).
I can't wait to see what the camera is like. It has 10 mega pixels and is made by Canon. Where can you go wrong with that eh?
Potatoes aside...........The cold will be along soon you'll see!
Jason
P.s. The potato in the photo (aahh, that rhymes) was actually from my fridge..........Potato fans please don't worry! He is back safely where he lives.........ready for a mashing he he;)
(C) JPT 2007
Just the one injection left now. I am going to miss those little pricks;) Ok, maybe not the pricks, but definitely the late Thursday night routine that is firstly to follow the sounds of my mobile phone and changing the alarm set to 23:15 (from 20:27 previously) to 23:27 then taking out from my fridge the little syringe full of Interferon a needle & a Sterit. I walk back into the living room and place it on the arm of my sofa and wait (usually in front of my trusty Mac)) until the alarm goes off again. The next thing is to change the alarm now to 08:27 for my morning pills. Now with my injection at a suitable room temperature the thing is ready to inject. Sat on either the arm or the long back of my sofa now (on which side depends which side of my body is due for injecting) The area of skin on my side (Love handle basically) is swabbed and left to dry for a few seconds while I attatch the needle to the tiny syringe. I might also add that I always inject topless (calm down ladies;) as it is so much easier without a shirt or something draping in the way. I pinch about an inch of flesh between my thumb & index finger and gently slide the needle at a 45 degree angle into the scampi sized lump. No pain.......it's quite interesting watching the needle disappear the way it does......all the way in until I can't see any metal at all. Then in goes the pretty red plunger, quite slowly (probably about 10 seconds) all the Interferon is invited into my body. Everything and including the air is now inside me. I leave the needle in there for another 10 seconds then pull it all out. With no blood or mark for that matter, I stand up and go back to the kitchen and mark the syringe with the number that it was (47 in this case) and pop it into the box in the cupboard with the other 46.
That's it.
What will I do now? Oh Thursday nights, what will I do?............Exactly....nothing;) Sitting on my computer I expect, writing a post or poem maybe for on here or perhaps checking out the Forum to see what's going on there. Oh, and not forgetting my dreams too. Whatever I will be doing, at least I know that I will feel the same as I always do at this time of day. I can never really explain the way I feel, but when I tried to with my Sister Tania once she said that from what I had said it sounds like what it's like when you are on E. I have never done E but my Sister has in the past. Not a good drug at all!
I know why I feel like this. My HIV drugs are to blame but these feelings are tolerable and I know they will go away by about midnight. It happens just in the evening too. I take a slightly different cocktail in the morning, plus right after my AM pills I go straight back to sleep. I have been getting these feelings for several years now................I'm boring myself just even writing about it.
I was out on my bike last night, just a local ride. I was sitting at my desk playing around with a photo on Photoshop and POW! Power out! Nothing.........pitch bloody black! That's it I thought...........got out my torch and found all my cycling gear, put it on, grabbed my i-pod and went out for a ride (potatoes are fine during power outs; "Store in a cool dark place" is what it says on the bag, so I wasn't too worried about leaving them). It was quite exciting really. All the houses and flats between Kingston Bridge and Teddington Lock but inbetween Broom Rd and the Thames were without power! My lights are pretty good normally but being out in that kind of darkness was a little like being up in the Surrey Hills. Actually, I did notice that Teddington Studios had power and they are down the same road as me. It must be nice if you have your own back up power eh. Like me and my torch;)
Not a bad ride.........quick too & warm but getting cooler again........& about bloody time too! I was back home inside an hour and even when cycling past Teddington Lock & the studios (where "The Office" was filmed) I could see that the electricity was back on where I live. With my potatoes already at peace, I was too now knowing my Interferon & FactorVIII was ok.........& my humus (I'm back eating it again....a nice caralemized red onion flavour), chicken, grapes (they gotta be cold & crunchy like tiny little apples) and my blood red orange juice!
So on to today. Could this have been the most boring day in history since the potato was first invented?.......Let me explain. I have ordered a new digital camera from the internet and they said it will arrive either today or Friday (tomorrow). Well it didn't arrive today, so the whole day was wasted! Now I have the prospect of waiting in all day tomorrow too. Could Friday equal the potato? I do hope not. According to my "special" tracking number I have access to (via the internet) it was with DHL at a Paris airport around 22:36 tonight wating to be shipped out to Heathrow - right by where I live) What I really hope is that it arrives first thing in the morning...........hang on, no not first thing. Perhaps around 11am would be a better time. Before lunchtime anyway. It better be here before 7pm as I am going out to "The Hills" with Lee with our bikes (after a 22 mile drive that is).
I can't wait to see what the camera is like. It has 10 mega pixels and is made by Canon. Where can you go wrong with that eh?
Potatoes aside...........The cold will be along soon you'll see!
Jason
P.s. The potato in the photo (aahh, that rhymes) was actually from my fridge..........Potato fans please don't worry! He is back safely where he lives.........ready for a mashing he he;)
(C) JPT 2007
The Mighty C say's go here for more.....
Interferon Injection
Wednesday, January 10, 2007
"Yesterday's Pornography #2"
Me & My Stormtrooper Helmet.
So due to a lack of boo's, rotten egg's & the odd tomato smacking me right in my "virtual" gob I have prepared another batch of written diary entries that I made in the very early months of my Hep C tx, before I had a Blog. So sit back with a large carton of popcorn..... prefrably coated in a thin layer of yummy arsenic!
#2 of 5...
Written @ 00:22am Wednesday 29th March 2006;
Alright! I finally went and ordered my Andrew Ainsworth made Stormtropper body armour. I went at 5pm to 76 The Green in Twickenham. Once in the workshop I had to step over various body parts destined for other customers. Andrew was downstairs drilling holes in more armour parts. Money well spent! I have everything now. The 'Stunt' helmet (Stormtrooper) made by 'AA' (Andrew Ainsworth) that I bought way back in January 2005 (when he first started reproducing them). A 'Master Replica' E-11 Stormtrooper Blaster Rifle. A black ribbed neck piece from e-bay. Not many people will be able to say that they own their very own Stormtrooper made by the man who designed and hand made the originals back in 76 for Star Wars 'ANH' (A New Hope)..........but I can:) In the same building with the original moulds too.
Went to gym and then Jac & I had a Subway over at my flat & watched Noel Fielding & Jullian Barrett in a short film called "Sweet". Very very funny! Those two are wonderful! My HIV drugs (as usual) made me feel completely detached from myself in a funny kind of 'being in someone elses skin, with boiling blood whilst sitting in a jumbo-jet just before it crashes (upside down) into the ocean!
Written @ 12:18pm Friday 31st March 2006;
Hello! Saw my Dad Wednesday night & we played golf on the PS2 & I won again. He won a few holes (2) out of about 28. Yesterday I went to the gym & then saw my Mum. I took a load of potatoes round & we peeled them & cooked all of them to put in my freezer.......I can be such a lazy bastard sometimes. I stayed until 10pm after mash & beans with sausages. We watched a documentary about caring for your elderly parents. Then I missed my Interferon jab by 1 hour & 10 mins (Me now - the only time ever in 48wks I might add!) I was so gutted and worried all night long before I got up first thing in the morning to phone my docs at the RFH. They said it would be fine as it was only an hour and not to worry but don't do it again! I will set my alarm on my mobile phone from now on! I was distracted by "Google Earth". Mark & Ria go to Cuba tomorrow. I am feeding their cat for the time they are away. I collect the keys at 1pm today.
Written @ 15:51pm Sunday 2nd April 2006;
Went for a hike on Friday night with Lee. Not as long as usual & my feet hurt during and killed me the next day!! But still nice. We came across a burned down fire that we stood by keeping nice and warm. On the grass all around us were hundreds of worms and when we walked by them they felt our vibrations and quickly disappeared into their tunnels.
Saturday evening I saw Mum, Tarn & Daisy round at my Mums.We had fish & chips from the chippy & watched a dancing show on ITV1. Naif & Millie popped by for a bit and Millie kissed me on my cheek:)
Today (Sunday) I have been in all day. Gym beckons. I think my Mum is upset that I didn't give her a mothers day card last Sunday. So I will make her one in the week and take her out to her favorite Harvester restaurant to say sorry.
Nicola had a shunt in her new car. She is fine but shaken I think......not her fault.
Boat Race today. Mum wants Oxford to win...........or Cambridge? I'm not sure! I shall watch it on TV.
Written @ 18:20pm Wednesday 5th April 2006;
Millie watched the boat race from the riverbank (Barnes). I went out on my bike for an hour to Richmond via Teddington Lock, then back along the tow-path via Twickenham. Nice weather. Fed Mark & Ria's cat Herbert. Bumped into Mum & Daisy in Kingston today. I bought daisy a black studded belt that she really wanted from "Brilliant". Then we met back at Tania's & played in the garden all afternoon with Millie on her new slide. Nice & warm.
Going to Dads for a couple of hours at 7pm to play golf again.
I am doing ok on my Hep C treatment stuff. Dry, itchy knuckles are much better (E-45). Got a kind of blister thingy on my bottom lip. Small and doesn't hurt (3 weeks). Otherwise pretty ok.
Haven't seen Claire since August 05. We talk & e-mail often. It seems we are just friends now. I could go and visit but not up to it really, not while I am having this Hep C stuff. Be nice if she could come visit here sometime in the future:)
Written @ 11:30am Thursday 6th April 2006 (Interferon Injection day #7);
Played golf at my Dads last night & can you believe it.........he beat me! I don't know what went wrong;)
Anyway, Claire text me at 03:00am to say Nun-night & that she missed me.
It's nice and sunny today (at the moment) cool though. Lee wanted to go out for a bike ride last night but I was being spanked at golf round my Dads. We are going Friday evening instead.
Tarn's Birthday soon (Monday) 32 years old.
Jason
"That's all folk's!" Until the next riveting instalment that is;)
(C) JPT 2007
So due to a lack of boo's, rotten egg's & the odd tomato smacking me right in my "virtual" gob I have prepared another batch of written diary entries that I made in the very early months of my Hep C tx, before I had a Blog. So sit back with a large carton of popcorn..... prefrably coated in a thin layer of yummy arsenic!
#2 of 5...
Written @ 00:22am Wednesday 29th March 2006;
Alright! I finally went and ordered my Andrew Ainsworth made Stormtropper body armour. I went at 5pm to 76 The Green in Twickenham. Once in the workshop I had to step over various body parts destined for other customers. Andrew was downstairs drilling holes in more armour parts. Money well spent! I have everything now. The 'Stunt' helmet (Stormtrooper) made by 'AA' (Andrew Ainsworth) that I bought way back in January 2005 (when he first started reproducing them). A 'Master Replica' E-11 Stormtrooper Blaster Rifle. A black ribbed neck piece from e-bay. Not many people will be able to say that they own their very own Stormtrooper made by the man who designed and hand made the originals back in 76 for Star Wars 'ANH' (A New Hope)..........but I can:) In the same building with the original moulds too.
Went to gym and then Jac & I had a Subway over at my flat & watched Noel Fielding & Jullian Barrett in a short film called "Sweet". Very very funny! Those two are wonderful! My HIV drugs (as usual) made me feel completely detached from myself in a funny kind of 'being in someone elses skin, with boiling blood whilst sitting in a jumbo-jet just before it crashes (upside down) into the ocean!
Written @ 12:18pm Friday 31st March 2006;
Hello! Saw my Dad Wednesday night & we played golf on the PS2 & I won again. He won a few holes (2) out of about 28. Yesterday I went to the gym & then saw my Mum. I took a load of potatoes round & we peeled them & cooked all of them to put in my freezer.......I can be such a lazy bastard sometimes. I stayed until 10pm after mash & beans with sausages. We watched a documentary about caring for your elderly parents. Then I missed my Interferon jab by 1 hour & 10 mins (Me now - the only time ever in 48wks I might add!) I was so gutted and worried all night long before I got up first thing in the morning to phone my docs at the RFH. They said it would be fine as it was only an hour and not to worry but don't do it again! I will set my alarm on my mobile phone from now on! I was distracted by "Google Earth". Mark & Ria go to Cuba tomorrow. I am feeding their cat for the time they are away. I collect the keys at 1pm today.
Written @ 15:51pm Sunday 2nd April 2006;
Went for a hike on Friday night with Lee. Not as long as usual & my feet hurt during and killed me the next day!! But still nice. We came across a burned down fire that we stood by keeping nice and warm. On the grass all around us were hundreds of worms and when we walked by them they felt our vibrations and quickly disappeared into their tunnels.
Saturday evening I saw Mum, Tarn & Daisy round at my Mums.We had fish & chips from the chippy & watched a dancing show on ITV1. Naif & Millie popped by for a bit and Millie kissed me on my cheek:)
Today (Sunday) I have been in all day. Gym beckons. I think my Mum is upset that I didn't give her a mothers day card last Sunday. So I will make her one in the week and take her out to her favorite Harvester restaurant to say sorry.
Nicola had a shunt in her new car. She is fine but shaken I think......not her fault.
Boat Race today. Mum wants Oxford to win...........or Cambridge? I'm not sure! I shall watch it on TV.
Written @ 18:20pm Wednesday 5th April 2006;
Millie watched the boat race from the riverbank (Barnes). I went out on my bike for an hour to Richmond via Teddington Lock, then back along the tow-path via Twickenham. Nice weather. Fed Mark & Ria's cat Herbert. Bumped into Mum & Daisy in Kingston today. I bought daisy a black studded belt that she really wanted from "Brilliant". Then we met back at Tania's & played in the garden all afternoon with Millie on her new slide. Nice & warm.
Going to Dads for a couple of hours at 7pm to play golf again.
I am doing ok on my Hep C treatment stuff. Dry, itchy knuckles are much better (E-45). Got a kind of blister thingy on my bottom lip. Small and doesn't hurt (3 weeks). Otherwise pretty ok.
Haven't seen Claire since August 05. We talk & e-mail often. It seems we are just friends now. I could go and visit but not up to it really, not while I am having this Hep C stuff. Be nice if she could come visit here sometime in the future:)
Written @ 11:30am Thursday 6th April 2006 (Interferon Injection day #7);
Played golf at my Dads last night & can you believe it.........he beat me! I don't know what went wrong;)
Anyway, Claire text me at 03:00am to say Nun-night & that she missed me.
It's nice and sunny today (at the moment) cool though. Lee wanted to go out for a bike ride last night but I was being spanked at golf round my Dads. We are going Friday evening instead.
Tarn's Birthday soon (Monday) 32 years old.
Jason
"That's all folk's!" Until the next riveting instalment that is;)
(C) JPT 2007
The Mighty C say's go here for more.....
Pre-Blog Diary
Monday, January 08, 2007
Where has all The Cold Gone?
Hot & contemplating a bath & dinner.........07/01/07
Grey then bright, not bright enough to blind.
The road was damp but dry enough......My kind.
Into the park where the Deer are so dear,
The ground beneath me mud.......just why I'm here.
How warm do I need it to plain sail along,
How calm do I want it to not have to hold on.
The wind was my friend for half of the time,
Homeward bound was a terrible crime.
Puffing, panting & shielding my eye's,
The mud & the dirt, the burn in my thighs.
Everywhere others would stand in my way,
Not sure wether to run away or to panic & stay.
What must they think of this filthy man,
Pelting along as fast as he can.
Mud flicks up right into my face,
A little too, must reach their safe place.
Long gone now, with my mobile soundtrack,
I don't hear a child say; "I want a bike just like that".
My wheels are spinning, I am standing still,
This mud like rotten flesh, klings to this hill.
I stumble & fall as I push my way,
Beyond the sludge & worms & death & decay.
I am lucky this time as I usually am,
Not to end up on knee's or arse or face or hand.
Rest in sight for a drink & a bite,
To take a picture of a tree I might.
Onwards & windward I continue to plod,
Passing by bikes who ignore my nod.
It's not like that up at Holmbury or Pitch,
Where we stop & chat to rest a stitch.
Getting dark now, lights go on,
Seeing is easy, all feeling has gone.
Spat at from clouds, wind whipped & scathed,
Thoughts of soaking, dreaming & bathed.
Where has all the cold gone this Winters day?
Jason
(C) JPT 2007
Grey then bright, not bright enough to blind.
The road was damp but dry enough......My kind.
Into the park where the Deer are so dear,
The ground beneath me mud.......just why I'm here.
How warm do I need it to plain sail along,
How calm do I want it to not have to hold on.
The wind was my friend for half of the time,
Homeward bound was a terrible crime.
Puffing, panting & shielding my eye's,
The mud & the dirt, the burn in my thighs.
Everywhere others would stand in my way,
Not sure wether to run away or to panic & stay.
What must they think of this filthy man,
Pelting along as fast as he can.
Mud flicks up right into my face,
A little too, must reach their safe place.
Long gone now, with my mobile soundtrack,
I don't hear a child say; "I want a bike just like that".
My wheels are spinning, I am standing still,
This mud like rotten flesh, klings to this hill.
I stumble & fall as I push my way,
Beyond the sludge & worms & death & decay.
I am lucky this time as I usually am,
Not to end up on knee's or arse or face or hand.
Rest in sight for a drink & a bite,
To take a picture of a tree I might.
Onwards & windward I continue to plod,
Passing by bikes who ignore my nod.
It's not like that up at Holmbury or Pitch,
Where we stop & chat to rest a stitch.
Getting dark now, lights go on,
Seeing is easy, all feeling has gone.
Spat at from clouds, wind whipped & scathed,
Thoughts of soaking, dreaming & bathed.
Where has all the cold gone this Winters day?
Jason
(C) JPT 2007
The Mighty C say's go here for more.....
Mountain Biking
Saturday, January 06, 2007
"The Delicate Art of You More Than Me"
One page out from one book of mine.
As they drag you down to your lead filled knees,
Begging forgiveness.....please....oh....please!
Why you more than me in our hidden red sea,
Why me all alone as I cry for your pity,
For you at your lowest feeling black as coal,
Sucking it's dust from deep in this hole,
Why you more than me, blinded by pain,
Why me all alone, once more, once again,
Not with good, not with calm, no end in sight,
Just moulded in stone, not one grain of light,
Too tired to laugh, not one of you cries,
Not one tear left in those Hep C eyes,
To share just a little, the tiniest part,
Inject you, feed you, just how do I start,
To lead you, hold you, comfort and more,
The start of something less painful & sore,
Why you more than me, stuck in your hell,
Why me all alone, sealed up in my shell,
Too deep down hidden unable to see,
What can be done to answer your plea,
You're lost, You're cold, I'm useless for you,
It's dark in here for us stale few,
It's all I have known, for all of my days,
This pain, this darkness, this blood soaked haze,
Better avoid me, lest you fall,
Into my trap, deeper, darker, room for you all,
Why me more than you I leave you behind,
Why me all alone, lost forever I find,
So close, so warm, so inviting, so near,
I may have time.........not as much as you I fear.
Jason
(C) JPT 2007
As they drag you down to your lead filled knees,
Begging forgiveness.....please....oh....please!
Why you more than me in our hidden red sea,
Why me all alone as I cry for your pity,
For you at your lowest feeling black as coal,
Sucking it's dust from deep in this hole,
Why you more than me, blinded by pain,
Why me all alone, once more, once again,
Not with good, not with calm, no end in sight,
Just moulded in stone, not one grain of light,
Too tired to laugh, not one of you cries,
Not one tear left in those Hep C eyes,
To share just a little, the tiniest part,
Inject you, feed you, just how do I start,
To lead you, hold you, comfort and more,
The start of something less painful & sore,
Why you more than me, stuck in your hell,
Why me all alone, sealed up in my shell,
Too deep down hidden unable to see,
What can be done to answer your plea,
You're lost, You're cold, I'm useless for you,
It's dark in here for us stale few,
It's all I have known, for all of my days,
This pain, this darkness, this blood soaked haze,
Better avoid me, lest you fall,
Into my trap, deeper, darker, room for you all,
Why me more than you I leave you behind,
Why me all alone, lost forever I find,
So close, so warm, so inviting, so near,
I may have time.........not as much as you I fear.
Jason
(C) JPT 2007
Thursday, January 04, 2007
46th Injection & Miserable Sod's...
Bushy Park, New Year's Eve 2006.
How cruel is that eh? Just in a mood is all. Nothing I can do about it.......strange thing is that I have absolutely no reason for it at all......no excuse whatsoever! I don't have any noise coming from my nextdoor neighbour.....nor do I feel ill, nor have I just lost anyone close to me recently. So why this shitty mood? I went to pump my Mums tyres up on her bike as she hasn't used it for a while becuase of her knee. I was as short as a legless ant! She tried to tell me about her new kitchen & bathroom she was having fitted soon and all I could do was moan about how much of a rubbish job they will do (being council and all).
She asked me at the front door why the shitty mood................I just said........Why not? (What an arsehole!)
Sorry mum! (BTW-I rang earlier and said I was sorry).
Do you think my mood had anything to do with the two little dreams I had this morning?
The first dream I was with my Dad. We were investigating the corridors of a half finished office block...........when we got outside we saw an aeroplane in the sky just above some rooftops (it was light & sunny outside). We were amazed when it turned over onto it's back and disappeard behind the buildings entirely when all of a sudden there was an almighty crash and pieces of wreckage flew up into the air. We made our way to the crash site and soon discovered that it was just a model that looked real!
The second dream found me standing at a cash machine that I was trying to use which then began to malfunction and it seemed I could reach in and take the money! It was full up to the brim with unused notes. A woman approached me and looked as if she wanted something. She looked at me then at the slot where the card goes. I asked her if she was alright and she said that she left her card in the machine. I told her that it wasn't there when I attempted to insert my card and asked her if she got any money out. She hadn't. I tried to stand in the way of the money so she wouldn't see. But it was useless as the money started to fall out onto the ground........big wads of it. There was a phone number printed onto the machine that you could ring in case something like this happened & I was pondering wether to take the money and run or phone the number and hang around, look after the money until the Police arrived and maybe get a reward? All at the same time wishing that I had been the only one there so I could take the money and keep it all!
The bloody postman knocked on my frontdoor and woke me up!
Or maybe this mood stems from the pain I have been experiencing in my ankle the last few days! It hurt like hell last night! I treated it before and after my bike ride and almost certainly prevented a bad bleed! I did my local route around Richmond Park of about 14 miles. It felt more like 30 miles though due to the strong winds and a little rain. The temperature too was well above average for the time of year! It was just like being boiled in my pants!
So what do I do once I leave my Mums? I visit two local cemeteries to find something specific to photograph for a post I am writing for my Blog. Probably not the best move in the world! I didn't find what I was looking for either! I was amazed though at just how many graves were beginning to sink into the ground! They look like concrete ships frozen in a rolling sea of grass & dead flowers. I felt as if I should have been wearing a life jacket;) Actually, after a closer inspection I also noticed that the graves that were most uneven were the newest graves! It must be quite saddening for visitors to see their Loved ones graves like this! Me though..........I would be quite happy to be dragged off by hungry foxes when I am dead........or a revengeful Badger;)
On to my Hep C treatment. I have just taken my 46th Interferon injection and as usual it went in painless and leak free. I even filmed the whole episode on my video camera. I numbered the syringe with a permenent marker and put it with all my other syringes.
It may sound odd if a little morbid too but I am going to miss this Hep C tx routine! At the same time though I am looking forward to maybe going away abroad this year for some sun & sea. One thing is for sure..............My Blog ain't going nowhere!!!! Even that sounds negative! What I mean is is that I won't stop my Blog when I have finished tx. It has never even crossed my mind. Besides, my blog has never been just about my Hep C tx. This Blog dies when I do!
I have come across so many Blogs over the last several months most of which have although are still accessible are no longer being updated. I'm not talking about gaps of weeks or months but some haven't been updated for nearly a year or more. It is a shame really as I'd Love to know the rest of their stories. They have their reasons I suppose.
Still no side effects I might add.............ok, maybe the mood I am in has something to do with my tx.
Jason
P.s. The photograph for this post I took last thing on new year's eve just gone. It is my favorite tree in Bushy Park in between the cricket pitch & Woodland Gardens. Although it doesn't look it.......it was very windy and raining quite heavy too. I brightened it up a little as I thought it needed it......like I do;)
(C) JPT 2007
How cruel is that eh? Just in a mood is all. Nothing I can do about it.......strange thing is that I have absolutely no reason for it at all......no excuse whatsoever! I don't have any noise coming from my nextdoor neighbour.....nor do I feel ill, nor have I just lost anyone close to me recently. So why this shitty mood? I went to pump my Mums tyres up on her bike as she hasn't used it for a while becuase of her knee. I was as short as a legless ant! She tried to tell me about her new kitchen & bathroom she was having fitted soon and all I could do was moan about how much of a rubbish job they will do (being council and all).
She asked me at the front door why the shitty mood................I just said........Why not? (What an arsehole!)
Sorry mum! (BTW-I rang earlier and said I was sorry).
Do you think my mood had anything to do with the two little dreams I had this morning?
The first dream I was with my Dad. We were investigating the corridors of a half finished office block...........when we got outside we saw an aeroplane in the sky just above some rooftops (it was light & sunny outside). We were amazed when it turned over onto it's back and disappeard behind the buildings entirely when all of a sudden there was an almighty crash and pieces of wreckage flew up into the air. We made our way to the crash site and soon discovered that it was just a model that looked real!
The second dream found me standing at a cash machine that I was trying to use which then began to malfunction and it seemed I could reach in and take the money! It was full up to the brim with unused notes. A woman approached me and looked as if she wanted something. She looked at me then at the slot where the card goes. I asked her if she was alright and she said that she left her card in the machine. I told her that it wasn't there when I attempted to insert my card and asked her if she got any money out. She hadn't. I tried to stand in the way of the money so she wouldn't see. But it was useless as the money started to fall out onto the ground........big wads of it. There was a phone number printed onto the machine that you could ring in case something like this happened & I was pondering wether to take the money and run or phone the number and hang around, look after the money until the Police arrived and maybe get a reward? All at the same time wishing that I had been the only one there so I could take the money and keep it all!
The bloody postman knocked on my frontdoor and woke me up!
Or maybe this mood stems from the pain I have been experiencing in my ankle the last few days! It hurt like hell last night! I treated it before and after my bike ride and almost certainly prevented a bad bleed! I did my local route around Richmond Park of about 14 miles. It felt more like 30 miles though due to the strong winds and a little rain. The temperature too was well above average for the time of year! It was just like being boiled in my pants!
So what do I do once I leave my Mums? I visit two local cemeteries to find something specific to photograph for a post I am writing for my Blog. Probably not the best move in the world! I didn't find what I was looking for either! I was amazed though at just how many graves were beginning to sink into the ground! They look like concrete ships frozen in a rolling sea of grass & dead flowers. I felt as if I should have been wearing a life jacket;) Actually, after a closer inspection I also noticed that the graves that were most uneven were the newest graves! It must be quite saddening for visitors to see their Loved ones graves like this! Me though..........I would be quite happy to be dragged off by hungry foxes when I am dead........or a revengeful Badger;)
On to my Hep C treatment. I have just taken my 46th Interferon injection and as usual it went in painless and leak free. I even filmed the whole episode on my video camera. I numbered the syringe with a permenent marker and put it with all my other syringes.
It may sound odd if a little morbid too but I am going to miss this Hep C tx routine! At the same time though I am looking forward to maybe going away abroad this year for some sun & sea. One thing is for sure..............My Blog ain't going nowhere!!!! Even that sounds negative! What I mean is is that I won't stop my Blog when I have finished tx. It has never even crossed my mind. Besides, my blog has never been just about my Hep C tx. This Blog dies when I do!
I have come across so many Blogs over the last several months most of which have although are still accessible are no longer being updated. I'm not talking about gaps of weeks or months but some haven't been updated for nearly a year or more. It is a shame really as I'd Love to know the rest of their stories. They have their reasons I suppose.
Still no side effects I might add.............ok, maybe the mood I am in has something to do with my tx.
Jason
P.s. The photograph for this post I took last thing on new year's eve just gone. It is my favorite tree in Bushy Park in between the cricket pitch & Woodland Gardens. Although it doesn't look it.......it was very windy and raining quite heavy too. I brightened it up a little as I thought it needed it......like I do;)
(C) JPT 2007
The Mighty C say's go here for more.....
Interferon Injection
Wednesday, January 03, 2007
"Yesterday's Pornography #1"
Out doing what I Love to do, 26th March 2006 (one month after I started tx).
The post below are entries (word for word) from a little diary I kept at the beginning of my Hep C tx and although I have said I hate keeping written diaries (and I do) I still however managed to get some things down on paper and have only just thought of posting the stuff. It isn't much but might give a little insight into what was going through my mind back in the early days of my tx. I have entitled this batch of posts "Yesterday's Pornography" and this is batch #1 and so on. The name for the post's came simply because on the front of the pad I wrote them in I had written "Pornography Today" for some reason. So "Yesterday's Pornography" they will be know as on my Blog. I will try to include a photo that I took from around the date of the original post too.................Be prepared to be bored shitless........believe me, they do get pretty monotonous by #4 & #5! But you will have to wait for those in another post. Enjoy.
#1 of 5...
Written @ 13:41pm Wednesday 15th March 2006 (the day before my 4th Interferon Injection & 22 days after I started tx);
Am I special? Am I brave, strong, fearless etc etc? Well, I don't really know. I mean do I even have a choice? I suppose maybe they are the strong ones and I am the weak, hanging on to see what it's like at the end because I can't end it sooner on my own terms. What I really know is that I am willing to see what it's like at the end and see if I can beat it and last longer than all the others.
I started Interferon & Ribavirin for the benefit of the largest organ "in" my body (& getting bigger!), let's see if we can stop that shall we! A maximum of 48wks of treatment. I started Thursday 23rd Feb. I have to have an injection once a week & tablets everyday. Including my other tablets I am taking 21 pills per day. 4 of those are Multi-Vits & painkillers though. I take my 4th jab tomorrow at 23:30ish pm. Checkout side effects on the internet! Most people it seems can't handle the side effects but I will see! So far so good!
I got new neighbours upstairs, Graham & Debbie, they are absolutely perfect! Unlike my 'other' ones! Two words - Horrible Death! I have been up for coffee & chats 3 times. Very nice people indeed!
What else have I been doing? On April 6th 2006 I would have been going to the gym for 1 year. "Cannons" Richmond Athletics Club. It's a bit harder since my Interferon & Ribavirin! So I have to slow down a bit plus my right ankle is playing up again. Sometimes I suddenly can't walk at all and hobble out like a cripple! The pain is incredible! I haven't even been on my bike for a month, I was out on it 2-3 times a week! Still, the weather has been shit, when it warms up I will go out again round Richmond Park & meet Jac from the gym & go out with Lee too after he has put Evie to bed at 8pm. I hate writing sometimes, it's such a mess! Maybe it's the drugs or the pen or the surface I am writing on?
I am taking my Mum out to "Harvester" Betchworth, Surrey tomorrow. Dasiy is coming too. My Mum will be 63.
I have got to do something with my life! But what? Painting? Artistic painting that is! Not D.I.Y! Hurry up Summer weather!
(The next entry in my pad is a dream I had and although I would Love to include it in my Blog I just can't possibly do it! It is very rude!)
Written @ 11am Thursday 16th March 2006 (Day of my 4th Interferon Injection);
Freeze dried........(Unfortunately I had to leave this out as I think it may have been a little too rude and revealing to include it)
Written @ 13:08 Thursday 16th March 2006;
Wished my Mum a Happy Birthday by phone. She was on the bus coming back from Twickenham to Meadway for lunch. I shall collect her and Daisy from Tania's at 17:30-18:00 for fish & chips at Harvesters. It's grey out & I have to go out for Mums Birthday card. I would have made one but I don't feel like it.
Tele-Marketer rang and he said that he wasn't selling anything blah blah blah........I said, yes, well, I still don't want to talk to you do I! & hung up:)
Going to the gym too this afternoon.
Written @ 11:43 Friday 17th March 2006;
Had a nice meal I think, me, Mum & Daisy. We like those kind of places, but what is it about the finger prints all over the windows? And just the general grubbiness of the places? We listened to "Placebo" on the way home. Daisy likes them I think. I have to get Millie a present today for her 2nd Birthday which is tomorrow. I don't have a clue what to get yet?
Daisy wants money. I got my Mum a book. Also a bike when we get round to it.
Written @ 22:23 Saturday 18th March 2006;
I did go to the gym yesterday & I had a sunbed too. Anyway, it was (is) Millies Birthday today, 2 years old and we all went to Tania & Nathans (Naif) for lunch. I cycled there on my "Dessert Storm". Windy & cold! It was a nice day but as always I hate breathing in rooms with other people! (Dad, Mum, Lee, Nic, Evie, Tarn, Naif, Millie, Daisy & Me).
Bought two novels from 1976 from e-bay. Terry Nation's "Survivors". I quite often wish I was involved in a situation just like that one! Read the book & find out what I mean.......or watch the TV series instead. It is brilliant!
Written @ 14:40 Tuesday 21st March 2006 (two days before my 5th Interferon Injection);
Lee, Naif & I went for a hike on Sunday evening; 1 hour & 35 minutes. It was good. We walked around Norbury Estate. Before that, in the day, they went to Hayling Island? (Millie, Daisy, Mum, Naif & Tarn). They went to Brocketts farm yesterday. Daisy's 14th Birthday. I gave Daisy £80 & Millie £80 for a slide to go in the back garden. Today I got "Robot Chicken" on DVD from e-bay. The New Ian Curtis (Joy Division) film is being filmed later in the year. Sam Riley will play Ian in "Control".
Written @ 23:58 Friday 24th March 2006;
Nicola passed her driving test today, First time. I new she would. Just like me.
Been for a walk up Box Hill tonight with Lee. My ankle was quite painful but to prevent it from turning into a bleed I injected before & afterwards. It rained a bit but that was nice. Went to the RFH (Royal Free Hospital) for 2nd visit (3rd really). My knuckles are getting itchy & bumpy. E-45 works. Nothing to cry about. Very warm today......14 degrees. Dirty train and dirty people on it! Put on weight too. Two weeks ago I was 77.3kg and now I am 77.8kg.
I might get myself some Stormtrooper armour next week. £600. Made by the man who made the original Star Wars Stormtrooper armour back in 1976. I already have his "Stunt" helmet (£445). His name is Andrew Ainsworth.
Written @ 20:52 Sunday 26th March 2006 (Mothers Day & 4 days before my 6th Interferon injection);
Well I didn't see my Mum today, but I rang her up and wished her a HMD (I can't believe I didn't spend the day with her!).
I went for a bike ride at 2pm. Lee & I met Matt (Lee's work mate) at "Ryka's" Box Hill and we off-roaded it for over 2 & a half hours in rain & mud from Ryka's, past the Stepping Stone pub & "Box Hill & Westhumble" train station, up the long hill all the way across to Brockets farm & saw 3 Llamas, then we came back again. We had a great time and I am very Knackered and my foot was 'alright'! (see this posts photo)
Jason
P.s. If you don't want anymore just let me know;) & also if you think the dream should go in tell me;) Otherwise the next edition of "Yesterday's Pornography" will arrive on your Blogsteps sometime in the next week...
(C) JPT 2007
The post below are entries (word for word) from a little diary I kept at the beginning of my Hep C tx and although I have said I hate keeping written diaries (and I do) I still however managed to get some things down on paper and have only just thought of posting the stuff. It isn't much but might give a little insight into what was going through my mind back in the early days of my tx. I have entitled this batch of posts "Yesterday's Pornography" and this is batch #1 and so on. The name for the post's came simply because on the front of the pad I wrote them in I had written "Pornography Today" for some reason. So "Yesterday's Pornography" they will be know as on my Blog. I will try to include a photo that I took from around the date of the original post too.................Be prepared to be bored shitless........believe me, they do get pretty monotonous by #4 & #5! But you will have to wait for those in another post. Enjoy.
#1 of 5...
Written @ 13:41pm Wednesday 15th March 2006 (the day before my 4th Interferon Injection & 22 days after I started tx);
Am I special? Am I brave, strong, fearless etc etc? Well, I don't really know. I mean do I even have a choice? I suppose maybe they are the strong ones and I am the weak, hanging on to see what it's like at the end because I can't end it sooner on my own terms. What I really know is that I am willing to see what it's like at the end and see if I can beat it and last longer than all the others.
I started Interferon & Ribavirin for the benefit of the largest organ "in" my body (& getting bigger!), let's see if we can stop that shall we! A maximum of 48wks of treatment. I started Thursday 23rd Feb. I have to have an injection once a week & tablets everyday. Including my other tablets I am taking 21 pills per day. 4 of those are Multi-Vits & painkillers though. I take my 4th jab tomorrow at 23:30ish pm. Checkout side effects on the internet! Most people it seems can't handle the side effects but I will see! So far so good!
I got new neighbours upstairs, Graham & Debbie, they are absolutely perfect! Unlike my 'other' ones! Two words - Horrible Death! I have been up for coffee & chats 3 times. Very nice people indeed!
What else have I been doing? On April 6th 2006 I would have been going to the gym for 1 year. "Cannons" Richmond Athletics Club. It's a bit harder since my Interferon & Ribavirin! So I have to slow down a bit plus my right ankle is playing up again. Sometimes I suddenly can't walk at all and hobble out like a cripple! The pain is incredible! I haven't even been on my bike for a month, I was out on it 2-3 times a week! Still, the weather has been shit, when it warms up I will go out again round Richmond Park & meet Jac from the gym & go out with Lee too after he has put Evie to bed at 8pm. I hate writing sometimes, it's such a mess! Maybe it's the drugs or the pen or the surface I am writing on?
I am taking my Mum out to "Harvester" Betchworth, Surrey tomorrow. Dasiy is coming too. My Mum will be 63.
I have got to do something with my life! But what? Painting? Artistic painting that is! Not D.I.Y! Hurry up Summer weather!
(The next entry in my pad is a dream I had and although I would Love to include it in my Blog I just can't possibly do it! It is very rude!)
Written @ 11am Thursday 16th March 2006 (Day of my 4th Interferon Injection);
Freeze dried........(Unfortunately I had to leave this out as I think it may have been a little too rude and revealing to include it)
Written @ 13:08 Thursday 16th March 2006;
Wished my Mum a Happy Birthday by phone. She was on the bus coming back from Twickenham to Meadway for lunch. I shall collect her and Daisy from Tania's at 17:30-18:00 for fish & chips at Harvesters. It's grey out & I have to go out for Mums Birthday card. I would have made one but I don't feel like it.
Tele-Marketer rang and he said that he wasn't selling anything blah blah blah........I said, yes, well, I still don't want to talk to you do I! & hung up:)
Going to the gym too this afternoon.
Written @ 11:43 Friday 17th March 2006;
Had a nice meal I think, me, Mum & Daisy. We like those kind of places, but what is it about the finger prints all over the windows? And just the general grubbiness of the places? We listened to "Placebo" on the way home. Daisy likes them I think. I have to get Millie a present today for her 2nd Birthday which is tomorrow. I don't have a clue what to get yet?
Daisy wants money. I got my Mum a book. Also a bike when we get round to it.
Written @ 22:23 Saturday 18th March 2006;
I did go to the gym yesterday & I had a sunbed too. Anyway, it was (is) Millies Birthday today, 2 years old and we all went to Tania & Nathans (Naif) for lunch. I cycled there on my "Dessert Storm". Windy & cold! It was a nice day but as always I hate breathing in rooms with other people! (Dad, Mum, Lee, Nic, Evie, Tarn, Naif, Millie, Daisy & Me).
Bought two novels from 1976 from e-bay. Terry Nation's "Survivors". I quite often wish I was involved in a situation just like that one! Read the book & find out what I mean.......or watch the TV series instead. It is brilliant!
Written @ 14:40 Tuesday 21st March 2006 (two days before my 5th Interferon Injection);
Lee, Naif & I went for a hike on Sunday evening; 1 hour & 35 minutes. It was good. We walked around Norbury Estate. Before that, in the day, they went to Hayling Island? (Millie, Daisy, Mum, Naif & Tarn). They went to Brocketts farm yesterday. Daisy's 14th Birthday. I gave Daisy £80 & Millie £80 for a slide to go in the back garden. Today I got "Robot Chicken" on DVD from e-bay. The New Ian Curtis (Joy Division) film is being filmed later in the year. Sam Riley will play Ian in "Control".
Written @ 23:58 Friday 24th March 2006;
Nicola passed her driving test today, First time. I new she would. Just like me.
Been for a walk up Box Hill tonight with Lee. My ankle was quite painful but to prevent it from turning into a bleed I injected before & afterwards. It rained a bit but that was nice. Went to the RFH (Royal Free Hospital) for 2nd visit (3rd really). My knuckles are getting itchy & bumpy. E-45 works. Nothing to cry about. Very warm today......14 degrees. Dirty train and dirty people on it! Put on weight too. Two weeks ago I was 77.3kg and now I am 77.8kg.
I might get myself some Stormtrooper armour next week. £600. Made by the man who made the original Star Wars Stormtrooper armour back in 1976. I already have his "Stunt" helmet (£445). His name is Andrew Ainsworth.
Written @ 20:52 Sunday 26th March 2006 (Mothers Day & 4 days before my 6th Interferon injection);
Well I didn't see my Mum today, but I rang her up and wished her a HMD (I can't believe I didn't spend the day with her!).
I went for a bike ride at 2pm. Lee & I met Matt (Lee's work mate) at "Ryka's" Box Hill and we off-roaded it for over 2 & a half hours in rain & mud from Ryka's, past the Stepping Stone pub & "Box Hill & Westhumble" train station, up the long hill all the way across to Brockets farm & saw 3 Llamas, then we came back again. We had a great time and I am very Knackered and my foot was 'alright'! (see this posts photo)
Jason
P.s. If you don't want anymore just let me know;) & also if you think the dream should go in tell me;) Otherwise the next edition of "Yesterday's Pornography" will arrive on your Blogsteps sometime in the next week...
(C) JPT 2007
The Mighty C say's go here for more.....
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