Showing posts with label Six month post tx blood test. Show all posts
Showing posts with label Six month post tx blood test. Show all posts

Thursday, July 12, 2007

"Waiting for paper"

County Hall, South Bank, London yesterday.


Silly isn't it! All the way through tx and all the way through the last six months right up until my six month post tx blood test on't July 4th and not a bat of an eyelid as to what the implications may be if the outcome isn't successful. But since my test just one week ago I have been feeling it! I'm no longer in control and I absolutely hate this feeling! I'm not a control freak by any standards but I do like to see where I am going...even if it is nowhere. If I am in a car I will never be comfortable unless I am the driver...It doesn't matter how good the driver is. That's the sort of thing I mean.
The shadows & dark patches have been getting in the way big time on my bike rides! Let me explain...I have this OCD (we all have them) where as I pedal around, when either foot reaches the very bottom of it's stroke (closest to the ground) and there is a shadow there say from a tree or lamp post etc or a dark patch of tarmac or a line or crack or oil stain then I physically have to back pedal and start again until my foot reaches the bottom where it is clear and light etc. I say to my self that I will die if I push past and ignore it. Believe me I have tried to push past it and continue pedaling through such feelings and all that happens is what can only be described as a rather large elastic band twisting up tighter & tighter inside the very center of my whole body making the thought of death & illness magnify where the only way to get rid of it is to back pedal the same amount of times in the opposite direction until it feels free in my mind again. Sound odd? I don't suppose you would necessarily notice if you were to watch me because I am very aware of it when I do and try and make it look as natural as possible. Having said that, I probably look like a right twat;)

Anyway, I used to do it loads years ago for a very long time but it seemed to go away in the last year or so. It is always there but very very infrequent and only in the last week has it come back...since my blood test to be precise. I know it will go away when I get the result (as long as it is good that is) otherwise I'll have to figure out another way of stopping it...it drives me mad sometimes! I just want to pedal normally...maybe everyone does it though? I've never really looked to see. Maybe us cyclists are all mad and none of us are normal...That'd be nice;)

Also, I had a very strange dream this morning where I was waiting for my results to come through the letter box and my Niece Daisy & my Mum were there too. It dropped through the letter box and I held it in my hands thinking how I would react in front of my family if it was bad news and secretly thought that I would not react at all and just say 'Oh well.' And then I opened it and tried to see just from the shape of the paragraphs and positioning of the lettering wether I could tell what kind of news it was. I noticed a drawing and collage type thing, almost child like in design and very colourful. It looked like a multi-coloured bumble-bee with petals for wings and had a great big smile on it's face...I looked over at Daisy and said that it was good and burst into tears. She came over to me and hugged me and her tears fell onto my face and I felt wonderful! I know that when she reads this she will be rather embarrassed by it but hey...that's dreams for ya;) It won't be anything like that in real life I just know it. I'll smile a bit and start to phone people up and tell them the news...if it's good. Otherwise I'll probably just be really moody for a few days and look like a weirdo on my bike for a bit;)

So what else have I been doing? I went to the latest hearing into the Public Inquiry into contaminated blood products yesterday and met up with my good friend Ros the day before as she was down for the early start at Westminster and sat with her and her wonderful Mum & Dad through the whole of the hearing. I was thinking that even if this inquiry doesn't achieve what it set out to do then at least some very good friendships will have been formed because of it:)
An added bonus at yesterdays hearing was the switching of venues right at the last minute to just across the road to the Houses of Parliament. I don't think I have been in there before...maybe with the school when I was a kid but I was probably being naughty and throwing things at the policemen rather than realizing where I actually was. The TV cameras were there again and so were the policemen...I refrained from throwing anything at them this time as they were all holding rather shiny looking Heckler & Koch MP5 submachine guns! As with all the other hearings it was cramped and far too hot but also as with previous hearings the people giving evidence were varied & keen to help as much as they possibly can. Amongst the people in attendance to give evidence yesterday were Lord David Owen and Kelly Duda (whom was sitting next to me) producer of the film "Factor 8; The Arkansas Prison Blood Scandal". I still don't know what to make of the inquiry really as I still feel quite detached from the whole thing from all the years I have basically turned a blind eye to all things like it. I do however find it very interesting and do feel the need to be there for some reason. I'll most certainly be at the next one on the 25th July. I might even take along my friend Jac as she has wanted to come along for a while now. Maybe my Mum too if she feels like it?



Jason


P.s. The photo I took on my little walk over to the Houses of Parliament from Waterloo Station yesterday morning and noticed six full size Stormtroopers standing guard over County Hall and facing directly out over the River Thames where they are holding an exhibition to celebrate 30 years of Star Wars. I went there back in May with my Star Wars friend Anna and didn't even see the Stormtroopers! They must have been on special military maneuvers someplace else in the galaxy;)

P.p.s. Also Chris, I'm so pleased for you dude! You & Heather. I'll be joining you soon...very soon:)







(C) JPT 2007.........2036.79 miles.

Friday, July 06, 2007

"Drawn on the Fourth of July"

There there Jason...



That's it then...all done! It's been six months now since I finished my 48wks Hep C treatment. The blood has been taken and will now be looked at under a giant microscope very soon and no doubt tasted by the Royal Frees finest professional virus tasters and then spat out (obviously) into a giant silver metal bucket in the corner of the room upstairs where they do these kinds of tests. I'd Love to see this bucket. I bet they don't even have to empty it as the hospitals moggy probably gobbles up all the blood as it sets into a Lovely bucket shaped black pudding jelly...MMmmmm!!

As you can tell from the title of this post it was on July 4th that I gave my blood to them at the Royal Free Hospital in London. It was a pretty quick visit and I was quite happy to get out and back on the train with my thoughts.

Debra (Haemophilia Clinical Nurse Specialist) took my blood...about seven or eight vials full in total (I asked for the whole works as I'd like to know what my CD4 count is etc...plus I don't want the cat upstairs to go hungry;) I have known Debra since she first started at the Haemophilia Centre as a trainee in 1991. I've been going to the RFH since 1976! I see em come and I see em go...they all know me up there and some have known me since I was a lickle boy of five. As you can imagine...they absolutely adore me up there;)

I had meself a little circular plaster to cover up the hole that the needle made in my vein...not so much to stop the bleeding as more of something to photograph when I got home for this post. I never go for plasters normally as a minute or so with a bit of cotton wool or in my case a square of (fresh) bogroll pressed on will do the trick.

On the train home I fell asleep listening to my ipod and had this very strange dream where this Swan was swimming away from me and all I wanted to do was to put my arms around the beautiful birds feathered body and fly away if & when she took off into the sunset. I must have been so tired to have dreamed that on public transport! As much as I tried I never did catch the swan and will probably never know if I managed to get hold of her. One day mebbe?

Then that night when I got home I went for a paddle up the Thames all on me tod to wake me up a little and even had my own firework display at 10pm...bloody hell was it loud & long! I couldn't actually see it as I was so low down on the water...just the amazing sound. Was it for the Fourth of July?...or were they all for me? I like to think they were put on speshially for me. I've beat this virus...big time...and somebody already knows so;)

Like I said...all done and dusted & out of my hands now...actually it was my left arm;) No more than a fortnight for the result I was promised by Debra. And it will be in a letter that I will get posted through my letter box...can't wait:) I hope it says either 'Yes' it has gone...or 'No' it hasn't. Simple and in Lovely B&W. We'll see...we'll see.



Jason


P.s. I just reached the 2000 mile mark tonight with my overall mileage since Jan 1st this year. Another 1600 by the end of December to go to reach my target and I'll be laughing...or crying from all the pain in my right elbow!!








(C) JPT 2007.........2000 miles.