World Hepatitis Awareness Day, 1st October, 2006I have personally known 3 friends of mine to die from Hepatitis C related illnesses! I don't want to see anymore!
This post is for Martin, Dennis & David.
Jason
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Dedicated Followers of...My Blog;
Where I am at in Life, the Universe and Everything...
Thanks for skidding, popping, rolling, dropping, walking, biking, running, hiking, passing, tripping, plunging, skipping, sliding, crawling, weaving, falling by to read my Blog. You can always just look at the pretty pictures if I bore you to death with my mountain biking & kayaking trips, dreams & poems, wafflings of pain in my ankles, pain in my arm, various entries on life living with Haemophilia, blood, HIV & Hep C, how many miles I cycled last week, how long it took me blah blah bloody blah...
As you may have guessed, I have Haemophilia A (a kind of bleeding disorder). It is the worst kind apparently (severe) where I am left with less than 1% of the naturally present clotting factor (Factor VIII) in my blood needed to...er...clot my blood properly;) And as a result of treating the bleeds (by way of injection) that Haemophilia can cause I inadvertently infected myself with Hep C & HIV. I am still waiting to see if I got the mad cows disease too (vCJD) Moooo!.....Now that would explain a few things;)
I am treating my Haemophilia as I have always done (since I was two) and my HIV has been well under control since 1987 thanks to all the tablets that I consume twice a day each and every day. And my Hep C has been treated too (I finished 48wks Interferon/Ribavirin back in Feb 2007). I had my six month post treatment 'SVR' blood test taken on July 4th 2007 and on Thursday July 19th 2007 found out that my Hep C has gone & done a runner. And six months later again (Jan 2008), it is still undetectable! Basically, I'm cured of that one:) He's up in Hep C heaven apparently involved in some kind of viral orgy! Let him get on with it I say...& maybe one day my HIV will end up there with him and leave me with just the one "H" in my life (Haemophilia). Otherwise, I just try and get on with life......mostly keeping fit & healthy, annoying people, managing the constant pain in my joints & picking my nose;)
So enjoy the ride along with me & don't forget your puncture repair kit & perhaps a loaded gun so you can (if you want to) blow your brains out from your skull if it all becomes too boring for you;)
Jason (The Mighty C)
As you may have guessed, I have Haemophilia A (a kind of bleeding disorder). It is the worst kind apparently (severe) where I am left with less than 1% of the naturally present clotting factor (Factor VIII) in my blood needed to...er...clot my blood properly;) And as a result of treating the bleeds (by way of injection) that Haemophilia can cause I inadvertently infected myself with Hep C & HIV. I am still waiting to see if I got the mad cows disease too (vCJD) Moooo!.....Now that would explain a few things;)
I am treating my Haemophilia as I have always done (since I was two) and my HIV has been well under control since 1987 thanks to all the tablets that I consume twice a day each and every day. And my Hep C has been treated too (I finished 48wks Interferon/Ribavirin back in Feb 2007). I had my six month post treatment 'SVR' blood test taken on July 4th 2007 and on Thursday July 19th 2007 found out that my Hep C has gone & done a runner. And six months later again (Jan 2008), it is still undetectable! Basically, I'm cured of that one:) He's up in Hep C heaven apparently involved in some kind of viral orgy! Let him get on with it I say...& maybe one day my HIV will end up there with him and leave me with just the one "H" in my life (Haemophilia). Otherwise, I just try and get on with life......mostly keeping fit & healthy, annoying people, managing the constant pain in my joints & picking my nose;)
So enjoy the ride along with me & don't forget your puncture repair kit & perhaps a loaded gun so you can (if you want to) blow your brains out from your skull if it all becomes too boring for you;)
Jason (The Mighty C)
The Tip of the Iceberg....
- Jason Paul Tolmie
- Teddington, Middlesex, United Kingdom
- I am a quiet, sometimes moody, quite often annoying, but mostly happy 41 year old twat whom absolutely Loves the Countryside and trees and mountain biking & kayaking and throwing pebbles at empty Pepsi cans on the beach. I like to laugh out loud at things that are funny and take the piss out of everything and anything possible....including myself. The best feeling in the world (apart from the company of a funny woman) is taking a dump out in the open air and having a wee whilst having a drink at the exact same time. And my favorite part of the day is the night time when it is all nice and dark, where you can hide and jump out on people you want to frighten, but don't get me wrong, I love the sun too, as it gives me the chance to burn the back of my friend Lee's neck with a magnifying glass;)
Visit these links to look at my photos on Facebook or watch my videos on Youtube
Blog Archive
-
▼
2006
(68)
-
▼
October
(17)
- Sunday, Sunny, Sunday!
- A Space Where A Child Should Be....
- 36th injection & Clan de Fang
- Among the Millions of Needles, there was Life.....
- Lazy Sunday Afternoon!
- 35th Injection & Sleeping Trees...
- "The Edge of My Bed"
- One Year On from Ben
- 34th needle and Crying Mums...
- The Hep C Cat & the Liver...
- I'm so tired!
- Mud & mushrooms, dinner & feeling weird!
- 33rd Injection & Spotted Dick (without custard)
- No Easy Ride!
- Still Raining...
- Twin Trees
- Get Tested!
-
▼
October
(17)
Websites that make me tick
- Jen & Ryan's The Transmission - Great Lost Blog and Podcasts
- Jorge Garcia's (Hurley from Lost) great Blog.
- Nik At Nite (Great Lost Blog...Mostly)
- Brand new Eighties Matchbox forum
- Brand new Eighties Matchbox website
- Eighties Matchbox Forum
- The Eighties Matchbox B-Line Disaster
- Blood, Sweat & Tyres (Haemophilia Society Fundraisers)
- UK Haemophilia Society
- Independent Public Enquiry Contaminated Blood...
- Joy Division Central
- Redcarsgofaster
- Xfm
- YouTube
- Diary of a Mountainbiker
- The 'Hepatitis C' Forum
- Wiktionary
- Wikipedia
- Sigur Ros
- White Water the Canoe Centre
- Ian Curtis & Joy Division
- The Anoraks Guide To Blake's 7
- "Horizon" The Official Blake's 7 Fan Club
- His Dark Materials
- Chain Reaction Cycles
- Shepperton Design Studios
- ICO
- Shadow of the Colossus
- A Tribute to Douglas Adams
- LBC 97.3FM
My family & friend's have blogs, some of them anyway.....& some even post in them occas
- Shelley Skinner (My old school friend) Margate, Kent.
- Ros ((She's got 'Funny Blood' like me;) Kidderminster, UK.
- Fellow bleeder & Star Wars nut Chris (Seattle, USA)
- Ample's new blog. Florida, USA.
- Blah blah blah...(Fellow bleeder & B7 nut:)(Leeds, UK)
- Claire, San Diego, USA.
- Manf (My eldest Sister) Doncaster, UK
- Daisy (My Niece) London, UK.
- Koa, Hawaii, USA.
- Warriorwomen , London, UK.
Hep C Blogs
- Ros...fellow bleedette (Kidderminster, UK)(SVR)
- 48 Week Flu (Seattle, USA)(SVR)
- The Girl with the Hep C Eyes (Florida, USA)(SVR)
- Uncertain (Uncertain, USA;)(SVR)
- TeaStarWitch (New York, USA)
- Marsha (Lamar, Missouri, USA)
- Been There Done That (Cornwall, UK)
- Steve (Norwich, UK)
- Yuri's Hep C Diet (Derby, UK)
- Samples of a brighton thirty something (Brighton, UK)
- Minerva's Blog (Edinburgh, Scotland)(SVR)
- Marie's Blog (Colchester, UK)
- Lynda (Essex, UK)
- Laurie (South Wales, UK)
- Miss Poppy (Manchester, UK)
- Maria (Telford, UK)
- Liliana's World (Bolton, UK)
- Steve (Nottingham, UK)
- Denise (Near Louisiana, US)
- Terry Lee (Carmichael, US)
- Mica (Florida, USA)
- Jason (Minnesota, USA)
- Nicks Hep C Blog (Derby, UK)
- TopCats Blog (Eastbourne, UK)
- Hep C Boy (London, UK)
- Chris's Liver Log (Arizona, USA)
- Ijaz (London, UK)
- Ron Metcalfe (UK & Hep C Forum Inventor)
Your friend & Lover of sticky things say's go here for more.........
- Mountain Biking (62)
- Dreams (26)
- Poems (24)
- kayaking (21)
- Interferon Injection (19)
- Isolation (8)
- Gigs (7)
- Kayaks (7)
- Reminiscing (7)
- Cycling (6)
- Public enquiry (6)
- Joints (5)
- My Viruses (5)
- O.C.D's (5)
- Pre-Blog Diary (5)
- Dental (4)
- Haemophilia (4)
- Blood study (3)
- Frame of mind (3)
- Live bands (3)
- Pain (3)
- Side Effects (3)
- colds (3)
- Blood (2)
- Food Poisoning (2)
- HIV (2)
- HIV/HCV (2)
- Joy Division (2)
- My Birthday (2)
- My Mask (2)
- My fundraising (2)
- SVR (2)
- Six month post tx blood test (2)
- The beginning (2)
- Very special moments (2)
- agm (2)
- blood levels (2)
- chest infections (2)
- feeling like shit (2)
- music (2)
- ***** (1)
- 12 month post treatment result (1)
- Aids (1)
- BST 2007 (1)
- Bad blood (1)
- Baths (1)
- Bleeds (1)
- Blog title (1)
- Blog's 1st Birthday (1)
- Cleansing (1)
- Eighties Matchbox B-Line Disaster (1)
- Family Events (1)
- Funny (1)
- HIV medications (1)
- Hep C (1)
- Hep C Awareness Day 2006 (1)
- Hep C Gatherings (1)
- Hiking (1)
- Jac (1)
- London Gathering (1)
- London Walks (1)
- Member Introduction (1)
- Merida (1)
- Miss Poppy (1)
- My Meds (1)
- My school report 1979 (1)
- New Years Day (1)
- Nine Inch Nails (1)
- PCR Result (1)
- Riba-Rage (1)
- Rough Ride 2007 (1)
- Royal Free Hospital (1)
- Rutting Deer (1)
- Snow (1)
- Star Wars (1)
- Twelve month post tx blood test (1)
- With Scissors (1)
- World Aids Day (1)
- World Cup (1)
- World Towel Day 2007 (1)
- blog stats (1)
- fibroscan (1)
- foot and mouth (1)
- germs (1)
Miles I have cycled so far in 2008.........(Updating) rides and counting...
As the black, heavy, filth soaked coat slid from my strong shoulders, the ground waited to swallow!
- This is real! This is happening!
1 comment:
Thank you for your encouraging words on my blog. It's really nice to know that though it isn't all flowers and sugar cookies, it's bearable and we can make it through. And for all those that have passed before us and all those that will from this day on.Let's keep that number down to a ZERO. My prayers and thoughts go out to those. My candle is lit as well.
Post a Comment