My left hand today (Friday). It is the hand that feeds me, that I punch with, that I grip best with...throw darts with, flip-off with (as in swear), scratch with, inject with, pick my nose with. It is the first hand to hit the ground when I fall off my bike. It is the hand that pulls my seat belt over my body. It is the hand that does absolutely everything for me when I have a bad bleed in my right elbow. It is the hand that changes gear in my car. It is the hand that holds me up when I switch my suspension on and off with my right hand on my bike. It is the hand that tips my HIV & pain killer tablets into my mouth everyday. It is the hand that I will save you with if you ever fall into an icy lake. It is the hand that I will hold your hand with if you let me...
"It is dark and it is cold and everyone is sick and abominably uncomfortable with life"
...but I still do what I do best, which is hold on tight and shut my eyes (for the most part) and hope for the best.
What with a mouthful (literally) of very painful ulcers over the last week or so (almost gone now after a few Thalidomide tablets) and aching ankle joints, I had just about had enough until I thought how much worse off things could be...and most probably will be one day.
I sometimes wonder what would happen to me if I stopped all my HIV medications. Whether I would stay well or instead go on to develop full blown AIDS! It has been exactly twenty years since I first started my HIV medications and have been strictly taking them daily every single day since, more or less without fail! Not (as I learned from my HIV doctors) an easy feat to keep up to say the least. I've been on several HIV drug trials throughout the years and I have been through a few medication changes too (due to side effects or them not working as well as they'd hoped for) and here I am, still alive and still taking the drugs. Also, just for the record, I stopped taking my twice daily Aciclovir (Zovirax in tablet form) drugs to prevent me from getting cold sores. I stopped just over a week ago to see what would happen. I haven't had any cold sores yet! The reason that I decided to stop with them was because they aren't too good for your liver and well, without them my liver will thank me right? I haven't told my HIV doctors, but will do when I visit them next week. I think they'd prefer it if I wasn't taking them anyhow.
What am I going on about? I'm not so sure myself to be honest. Just thought of writing something and this is all I could think of. Plus, I wanted to tell everyone that I did my first ever roll in a kayak on Thursday using just my hands (no paddle or float). It was during the very last five minutes of my ninety minute session over at Ealing Pool. After an hour and twenty five minutes of just fucking around and doing regular rolls and stuff, Ian comes up to me and said to try a hand roll. I've tried before and failed on every attempt and just thought I'd fail again, but I thought what the hell and tried. I threw my paddle over to the side and capsized. After three attempts I did one and then another and another! They came to me as quickly as that! The proof of the pudding will be whether I can still do them next week. We shall see, but I am feeling pretty confident. Cheers Ian.
It'll be Christmas soon, then Summer will be here again.
"I Love the dark and I Love the cold, but I don't so much care for sickness and feeling abominably uncomfortable with life"
Jason
P.s. Congratulations to UC achieving "SVR" recently. You da woman! xx
(C) JPT 2007.........3131.72 miles.
Saturday, October 27, 2007
Sunday, October 14, 2007
"My Kayaking For September 2007"
Jac (My bestest friend) @ The Buffalo Bar in Islington to see "William".
As you can see, not a lot of kayaking during the month of September. The main reason being that I have been doing loads of cycling and have been more or less relying on my Thursday night pool sessions in Ealing to do a bit. Plus I missed one session in Sept due to the fact that I couldn't walk! I wanted so much to go but was in far too much pain!
I don't even have a photo related to kayaking to post with it, so I thought I'd stick another pic of my best friend Jac up as this is what I did last time...besides, I think she looks far much better than I do;) Apology's for the fact that the photo wasn't even taken in September. I took it on 9.10.07 (Jac's Birthday) when we went gigging.
Thursday 6th September 2007 @ 21:00pm, I managed to get Jac to come along and promised that I wouldn't tip her in;), The pool was very packed with other boats which is unusual and made the whole experience a little disappointing, Jac got out early and sat on the side watching, if the pool was more quiet she'd have had a much better time. It was her first ever time in kayak too. I hope she goes again:)
Thursday 13th September 2007 @ 21:00pm, Ealing Pool, Lee & Ian, 1hr 30mins, no Jac this time...don't suppose we'll ever see her there again bless her little cotton socks;)
Thursday 20th September 2007 @ 21:00, Ealing pool, 1hr 30mins, Ian, Lee had cold, Ian has new boat, I was using a pair of hand paddles from the states tonight and found them to be quite good fun. So easy to roll with them...I think they were a little too big really and could do with a smaller pair. Ian's ankle is getting better and hopefully he will be able to come cycling with us again.
Jason
(C) JPT 2007
As you can see, not a lot of kayaking during the month of September. The main reason being that I have been doing loads of cycling and have been more or less relying on my Thursday night pool sessions in Ealing to do a bit. Plus I missed one session in Sept due to the fact that I couldn't walk! I wanted so much to go but was in far too much pain!
I don't even have a photo related to kayaking to post with it, so I thought I'd stick another pic of my best friend Jac up as this is what I did last time...besides, I think she looks far much better than I do;) Apology's for the fact that the photo wasn't even taken in September. I took it on 9.10.07 (Jac's Birthday) when we went gigging.
Thursday 6th September 2007 @ 21:00pm, I managed to get Jac to come along and promised that I wouldn't tip her in;), The pool was very packed with other boats which is unusual and made the whole experience a little disappointing, Jac got out early and sat on the side watching, if the pool was more quiet she'd have had a much better time. It was her first ever time in kayak too. I hope she goes again:)
Thursday 13th September 2007 @ 21:00pm, Ealing Pool, Lee & Ian, 1hr 30mins, no Jac this time...don't suppose we'll ever see her there again bless her little cotton socks;)
Thursday 20th September 2007 @ 21:00, Ealing pool, 1hr 30mins, Ian, Lee had cold, Ian has new boat, I was using a pair of hand paddles from the states tonight and found them to be quite good fun. So easy to roll with them...I think they were a little too big really and could do with a smaller pair. Ian's ankle is getting better and hopefully he will be able to come cycling with us again.
Jason
(C) JPT 2007
Saturday, October 13, 2007
"My Cycling For September 2007"
Me during my 100k marathon in Ruthin 16.08.07
Another month and another cycling post...yipee! Looks like I passed the 3000 mile mark for the year and I'm beginning to wonder if I will manage the 3600 by the time this year is up on December 31st? 550 odd miles in two & a half months? You betcha!!! Although I have been cycling and stuff, both my ankles have been playing up whether it be walking or cycling or just sitting in doors doing not a lot of anything! Walking though mainly causes the pain. I'm more or less ok cycling just as long as I don't put my feet down at traffic lights or at gates into RP etc, ie; impossible! But I still do it because...because I can.
So, what else have I been doing? I had meself a fibroscan at my haemophilia centre in Hampstead the other week and got a score of 9.6. They were happy with it, so I am too. I wasn't expecting the scan, nor did I particularly want one, but I had it anyway because...because I can.
Jac & I went up the hill...actually, we went up to North London on Tuesday to see a live band called "William". It was her birthday too. We had a great time although we nearly missed the last train back to Waterloo and then nearly missing the last train back to Twickenham too!
Again, Jac fell in Love with the lead singer Gavin and got me to take a photo of them together. Good band! He sings without his shoes because...because he can.
What else, what else, what else? Oh, yes, I went to Preston to this years Haemophilia Society AGM. I'd never been to one before and I gotta admit that if certain other haemophiliacs weren't there, I'd probably not bothered going. Ros was there as were Matt and another typeIII vWd Helen. She is pretty cool as she is a fellow Blakes 7 fan and she has a vein in her arm that vibrates! Now if that ain't cool, then what is?
Anyway, here are the stats for last months cycling;
Sunday 2nd September 2007 @ 12pm, Phil, RPx1 and a half, 17.43 miles, sunny and warm, dry, av 11.6, max 32mph, 1hr 30mins, temp 20, wind 14. Total 2727.95 miles...(2334.5 miles since Cateye)
Wednesday 5th September 2007 @ 17:00pm, RPx2 with small diversion to Jac's work to say hello and pump her back tyre up, warm and sunny, 25.36miles, av 13.2, max 28mph, 1hr 55mins. Total 2753.31 miles...(2359.9 miles since Cateye)
Friday 7th September 2007 @ 18:00pm, 19.83 miles, RPx1 and diversion to Mums for dinner in garden, sunny the dark, warm, dry, av 13.4, max 27.1 mph, 1hr 29mins, temp 22, wind 5. Total 2773.14 miles...(2379.7 miles since Cateye)
Sunday 9th September 2007 @ 12:30pm, Phil, HH & LH, 21.73 miles, 2hrs 31mins, warm, sunny & dry, Phil crashed a few times including one on BKB...he's fine I might add!, av 8.6, max 34.2 mph, temp 24, wind 7. Total 2794.87 miles...(2401.4 miles since Cateye)
Wednesday 12th September 2007 @ 18:00pm, RP on the road, 17.97 miles, warm, dry & sunny, 1hr 14mins, av 14.6, max 36.8 mph, temp 21, wind 4. Total 2812.84 miles...(2419.4 miles since Cateye)
Friday 14th September 2007 @ 18:00pm, BP, 10.17 miles, av 14.8, max 22.9 mph, 41 mins, dry/dusk, temp 19, wind 5. Total 2823.01 miles...(2429.6 miles since Cateye)
Sunday 16th September 2007 @ 09:30, Ruthin North Wales, Lee, Phil, Merida MTB Mountain Bike Marathon Series Final, Lee & Phil both did 50k and I did 100k, 58.04 miles, av 8.2, max 35.3 mph, 8hrs out and 7hrs pedaling in total, finished @ 17:25, sun, strong winds with clouds and rain later...see blog entry for 21st September to read about the ride. Total 2881.05 miles...(2487.6 miles since Cateye)
Sunday 23rd September 2007 @ 12:40, Home to Central London (Hovis "Freewheel" Bike Event) via A3 & Vauxhaull Bridge (going)/Waterloo Bridge (coming back), 40.58 miles, av 12, max 30.4 mph, mostly sunny and very windy coming back, 3hrs 22mins pedaling...back home at 5pm, temp 21, wind 14. Total 2921.63 miles...(2528.2 miles since Cateye)
Sunday 30th September 2007 @ 17:00, Lee, out for a little ride to see how my ankle was after three days of agony!, BP & RP, 23.54 miles, av 13.8, max 26.7 mph, 1hr 42mins, mild and bright, ankle was fine in the end and feels like it is 'back to normal'...thank goodness!, temp 16, wind 9. Total 2945.17 miles...(2551.7 miles since Cateye)
Jason
(C) JPT 2007.........3042.77 miles
Another month and another cycling post...yipee! Looks like I passed the 3000 mile mark for the year and I'm beginning to wonder if I will manage the 3600 by the time this year is up on December 31st? 550 odd miles in two & a half months? You betcha!!! Although I have been cycling and stuff, both my ankles have been playing up whether it be walking or cycling or just sitting in doors doing not a lot of anything! Walking though mainly causes the pain. I'm more or less ok cycling just as long as I don't put my feet down at traffic lights or at gates into RP etc, ie; impossible! But I still do it because...because I can.
So, what else have I been doing? I had meself a fibroscan at my haemophilia centre in Hampstead the other week and got a score of 9.6. They were happy with it, so I am too. I wasn't expecting the scan, nor did I particularly want one, but I had it anyway because...because I can.
Jac & I went up the hill...actually, we went up to North London on Tuesday to see a live band called "William". It was her birthday too. We had a great time although we nearly missed the last train back to Waterloo and then nearly missing the last train back to Twickenham too!
Again, Jac fell in Love with the lead singer Gavin and got me to take a photo of them together. Good band! He sings without his shoes because...because he can.
What else, what else, what else? Oh, yes, I went to Preston to this years Haemophilia Society AGM. I'd never been to one before and I gotta admit that if certain other haemophiliacs weren't there, I'd probably not bothered going. Ros was there as were Matt and another typeIII vWd Helen. She is pretty cool as she is a fellow Blakes 7 fan and she has a vein in her arm that vibrates! Now if that ain't cool, then what is?
Anyway, here are the stats for last months cycling;
Sunday 2nd September 2007 @ 12pm, Phil, RPx1 and a half, 17.43 miles, sunny and warm, dry, av 11.6, max 32mph, 1hr 30mins, temp 20, wind 14. Total 2727.95 miles...(2334.5 miles since Cateye)
Wednesday 5th September 2007 @ 17:00pm, RPx2 with small diversion to Jac's work to say hello and pump her back tyre up, warm and sunny, 25.36miles, av 13.2, max 28mph, 1hr 55mins. Total 2753.31 miles...(2359.9 miles since Cateye)
Friday 7th September 2007 @ 18:00pm, 19.83 miles, RPx1 and diversion to Mums for dinner in garden, sunny the dark, warm, dry, av 13.4, max 27.1 mph, 1hr 29mins, temp 22, wind 5. Total 2773.14 miles...(2379.7 miles since Cateye)
Sunday 9th September 2007 @ 12:30pm, Phil, HH & LH, 21.73 miles, 2hrs 31mins, warm, sunny & dry, Phil crashed a few times including one on BKB...he's fine I might add!, av 8.6, max 34.2 mph, temp 24, wind 7. Total 2794.87 miles...(2401.4 miles since Cateye)
Wednesday 12th September 2007 @ 18:00pm, RP on the road, 17.97 miles, warm, dry & sunny, 1hr 14mins, av 14.6, max 36.8 mph, temp 21, wind 4. Total 2812.84 miles...(2419.4 miles since Cateye)
Friday 14th September 2007 @ 18:00pm, BP, 10.17 miles, av 14.8, max 22.9 mph, 41 mins, dry/dusk, temp 19, wind 5. Total 2823.01 miles...(2429.6 miles since Cateye)
Sunday 16th September 2007 @ 09:30, Ruthin North Wales, Lee, Phil, Merida MTB Mountain Bike Marathon Series Final, Lee & Phil both did 50k and I did 100k, 58.04 miles, av 8.2, max 35.3 mph, 8hrs out and 7hrs pedaling in total, finished @ 17:25, sun, strong winds with clouds and rain later...see blog entry for 21st September to read about the ride. Total 2881.05 miles...(2487.6 miles since Cateye)
Sunday 23rd September 2007 @ 12:40, Home to Central London (Hovis "Freewheel" Bike Event) via A3 & Vauxhaull Bridge (going)/Waterloo Bridge (coming back), 40.58 miles, av 12, max 30.4 mph, mostly sunny and very windy coming back, 3hrs 22mins pedaling...back home at 5pm, temp 21, wind 14. Total 2921.63 miles...(2528.2 miles since Cateye)
Sunday 30th September 2007 @ 17:00, Lee, out for a little ride to see how my ankle was after three days of agony!, BP & RP, 23.54 miles, av 13.8, max 26.7 mph, 1hr 42mins, mild and bright, ankle was fine in the end and feels like it is 'back to normal'...thank goodness!, temp 16, wind 9. Total 2945.17 miles...(2551.7 miles since Cateye)
Jason
(C) JPT 2007.........3042.77 miles
The Mighty C say's go here for more.....
agm,
Cycling,
fibroscan,
Gigs,
Mountain Biking
Tuesday, October 09, 2007
"When The Vein Blows"
Alone but not lonely...
The quivering beast that finds it's peace
By lying low a while, until finding a feast
...Red veins that blow so fine and right, I seen it all tonight,
Blue veins that hide from fright, I saw it all that night,
So close to Curtis, so far from Deirdre,
The distance don't matter for neither can hear me
Tarmac invites plane to visit hard, water laps up against garage door whilst warm hands sleep on my thigh!
Not quite right, but I'm not pushing it away!
Jason
Happy Birthday Jac xx
(C) JPT 2007.........
The quivering beast that finds it's peace
By lying low a while, until finding a feast
...Red veins that blow so fine and right, I seen it all tonight,
Blue veins that hide from fright, I saw it all that night,
So close to Curtis, so far from Deirdre,
The distance don't matter for neither can hear me
Tarmac invites plane to visit hard, water laps up against garage door whilst warm hands sleep on my thigh!
Not quite right, but I'm not pushing it away!
Jason
Happy Birthday Jac xx
(C) JPT 2007.........
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